Stefan is a Chartered Psychologist and Associate Fellow of the British Psychological Society. He has more than 20 years’ experience in patient-centered outcome measure development and psychometric research. He initially studied Psychology at University College London, UK, and later completed a PhD in Health Services Research at the London School of Hygiene & Tropical Medicine, UK, before undertaking post-doctoral research at the University College London Institute of Neurology, UK.
Having previously worked extensively in qualitative and quantitative research projects, Stefan’s main area of interest is in developing, applying, and improving mixed methods psychometric research in clinical studies and therapeutic trials. He is especially interested in maximizing the interpretability of existing and new patient-centered outcome measures.
Stefan has worked as an academic and industry consultant researcher in patient centered outcome measurement across a range of clinical and surgical disciplines, including:
- Neurology (Alzheimer’s disease, Parkinson’s disease, stroke, Huntington’s disease, multiple sclerosis, neuropathic pain, cervical dystonia, autism)
- Rare disease (spinal muscular atrophy, Duchenne muscular dystrophy, Friedreich’s ataxia, myasthenia gravis, hemophilia)
- Rheumatology (rheumatoid arthritis, systemic lupus erythematosus)
- Surgery (hand, sino-nasal, cancer, aesthetic)
- Vascular (pulmonary embolism, deep-vein thrombosis, pressure ulcers)
- Oncology (pediatric, testicular, skin)
- Retinal diseases
Stefan is also co-developer of Q-Portfolio for cosmetic, plastic, reconstructive, and cancer surgery called the BREAST-Q©, FACE-Q©, BODY-Q©, and CLEFT-Q©. These PRO instruments facilitate comprehensive, yet pragmatic, assessment of outcomes that matter to patients while minimizing respondent burden. They have been used widely in clinical practice, research and therapeutic trials. Stefan and his co-developers have been repeatedly invited to present on the Q-Portfolio at the US Food and Drug Administration (FDA). More information can be found at https://webcore.mskcc.org/breastq/index.html
Stefan has published more than 130 articles in patient-centered outcome measurement in peer review journals. Stefan is also an academic reviewer for more than 20 peer review journals, including British Medical Journal Open, Quality of Life Research, and Health & Quality of Life Outcomes. Stefan has run invited short courses on psychometric mixed methods research at the FDA; American College of Surgeons; Royal College of Surgeons of Ireland; International Society for Quality of Life (ISOQOL); International Society For Pharmacoeconomics and Outcomes Research (ISPOR), London School of Hygiene & Tropical Medicine, UK; University College London, UK; McGill University, Canada; Memorial Sloan Kettering Cancer Center/Cornell Medical Centre, USA; University of Newcastle, UK; Universities of Kristianstad and Gothenburg, Sweden.
Stefan currently represents Modus Outcomes in the EURAMET-funded project NeuroMET: Innovative measurements for improved diagnosis and management of neurodegenerative diseases (NDD). He has also been a scientific advisory committee member of COSMIN Delphi study on Content Validity International Rare Diseases Research Consortium (IRDiRC) PCO Task Force; European Commission Initiative on Breast Cancer (ECIBC); National Institute of Neurological Disorders and Stroke (NINDS) Clinical Outcomes Group; Restore Burns and Wound Research Charity; and several ISPOR Task Forces. Stefan previously sat on the ISOQOL Board of Directors and was co-chair of the 17th Annual Conference in 2010.