Our Publications

Our team’s commitment to expanding the literature in patient-centered measurement has inspired hundreds of publications in numerous disease areas.

  1. Markowitz JT, Ma E, Solari PG, Marquis P, Shapiro AD, Konkle BA, et al. Development of a Concept-Driven Disease Impact Instrument from Patients with Hemophilia (Pediatric and Adult) and Caregivers. American Society of Hematology; Atlanta, GA, USA, 2017.
  2. Carcao M, Kearney S, Santagostino E, Oyesiku JO, Young NL, Meunier J, et al. Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX. Haemophilia. 2017;23(3):e222-4.
  3. Chowdary P, Kearney S, Regnault A, Hoxer CS, Yee DL. Improvement in health-related quality of life in patients with haemophilia B treated with nonacog beta pegol, a new extended half-life recombinant FIX product. Haemophilia. 2016;22(4):e267-74.
  4. Seremetis S, Kulkarni R, Regnault A, Santagostino E. Turoctocog alfa in the treatment of individuals with hemophilia A: review of quality of life data collected in Phase III trials. Clinical Investigation. 2015;5(9):755-66.
  5. Ozelo M, Meunier J, Hoxer CS, Slothuus U. Quality of life and satisfaction of adults with haemophilia A switched to prophylactic treatment with recombinant factor VIII turoctocog alfa. EAHAD; Helsinki, Finland, 2015.
  6. Ozelo M, Chowdary P, Regnault A, Busk AK. Impact of severe haemophilia A on patients' health status: results from the guardian™ 1 clinical trial of turoctocog alfa (NovoEight®). Haemophilia. 2015;21(4):451-7.
  7. Chowdary P, Kearney S, Yee D, Meunier J, Slothuus U, Hoxer CS. Improved health status of haemophilia B patients treated with nonacog beta pegol, a new glycopegylated recombinant FIX product with prolonged half-life. ISPOR; Philadelphia, USA, 2015.
  8. Chowdary P, Kearney S, Yee D, Meunier J, Slothuus U, Hoxer C. Improved health-related quality of life (HRQoL) of haemophilia B patients treated with a weekly 40IU/kg dose of a new long-acting recombinant factor IX (FIX) product, nonacog beta pegol. International Society of Thrombosis and Haemostasis (ISTH); 2015; Toronto, ON, Canada, 2015.
  9. Santagostino E, Lentz SR, Busk AK, Regnault A, Iorio A. Assessment of the impact of treatment on quality of life of patients with haemophilia A at different ages: insights from two clinical trials on turoctocog alfa. Haemophilia. 2014;20(4):527-34.
  10. Ozelo M, Chowdary P, Regnault A, Busk AK. Impact of severe haemophilia A on patients’ health status: results from the guardian™ 1 clinical trial of turoctocog alfa. World Federation of Hemophilia Congress; Melbourne, Australia, 2014.
  11. Santagostino E, Lentz S, Iorio A, Busk A, Abad Franch L, Meunier J, et al. Effect of turoctocog alfa on quality of life of children, adolescents and adults with haemophilia A: Results from two clinical trials. 6th Annual Congress of the European Association for Haemophilia and Allied Disorders; Warsaw, Poland, 2013.
  1. Klassen AF, Grant C, Barr R, Brill H, Kraus de Camargo O, Ronen GM, et al. Development and validation of a generic scale for use in transition programs to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child: care, health and development. 2015;41(4):547-58.
  2. Arnould B, Gauchoux R, Meunier J, Gilet H, Regnault A. Validation of ACCEPT, a new generic measure to assess how patients with chronic diseases balance between the advantages and disadvantages of following the recommended treatment regimen in real-life. ISPOR; Dublin, Ireland, 2013.
  1. Cano S, Mantovani L, Folkerts K, Gebel M, Sahin K, Zell E, et al. Patient-Reported Treatment Experience with Oral Rivaroxaban: Results from the Noninterventional XALIA Study of Deep-Vein Thrombosis. TH Open. 2018;02(02):e139-e46.
  2. Diab M, Bilkhu R, Soppa G, McGale N, Hirani SP, Newman SP, et al. Quality of Life in Relation to Length of Intensive Care Unit Stay After Cardiac Surgery. Journal of cardiothoracic and vascular anesthesia. 2017;31(3):1080-90.
  3. Beaney KE, Ward CE, Bappa DA, McGale N, Davies AK, Hirani SP, et al. A 19-SNP coronary heart disease gene score profile in subjects with type 2 diabetes: the coronary heart disease risk in type 2 diabetes (CoRDia study) study baseline characteristics. Cardiovascular diabetology. 2016;15(1):141.
  4. Prins MH, Bamber L, Cano SJ, Wang MY, Erkens P, Bauersachs R, et al. Patient-reported treatment satisfaction with oral rivaroxaban versus standard therapy in the treatment of pulmonary embolism; results from the EINSTEIN PE trial. Thrombosis research. 2015;135(2):281-8.
  5. Diab M, Soppa G, McGale N, Hirani SP, Newman S, Jahangiri M. Quality of Life and functional status following cardiac surgery. Society for Cardiothoracic Surgery in Great Britain and Ireland; Manchester, UK, 2015.
  6. Davies AK, McGale N, Humphries SE, Hirani SP, Beaney KE, Bappa DA, et al. Effectiveness of a self-management intervention with personalised genetic and lifestyle-related risk information on coronary heart disease and diabetes-related risk in type 2 diabetes (CoRDia): study protocol for a randomised controlled trial. Trials. 2015;16:547.
  7. Bonner N, Abetz L, Meunier J, Sikirica M, Mathai SC. Development and validation of the living with pulmonary hypertension questionnaire in pulmonary arterial hypertension patients. Health QualLife Outcomes. 2013;11(1):161.
  8. Bamber L, Wang MY, Prins MH, Ciniglio C, Bauersachs R, Lensing AW, et al. Patient-reported treatment satisfaction with oral rivaroxaban versus standard therapy in the treatment of acute symptomatic deep-vein thrombosis. Thrombosis and haemostasis. 2013;110(4):732-41.
  9. Cano SJ, Lamping DL, Bamber L, Smith S. The Anti-Clot Treatment Scale (ACTS) in clinical trials: cross-cultural validation in venous thromboembolism patients. Health Qual Life Outcomes. 2012;10:120.
  10. Cano S, Bamber L, Lamping D. Comparing oral rivaroxaban versus standard treatment in the treatment of symptomatic deep vein thrombosis: a patient-reported treatment satisfaction study. 17th Congress of the European association of hospital pharmacists; Milan, Italy, 2012.
  11. Marquis P, Le Gal M, Francillon A, Andre-Fouet X. [Quality of life and angina pectoris. Comparison of the effects of 2 nitrate derivatives administered discontinuously: transdermal 10 mg nitroglycerine patch (12 hours) and long-acting oral 40 mg isosorbide-5-mononitrate (once a day)]. Ann Cardiol Angeiol (Paris). 2001;50(6):340-50.
  12. Marquis P, Comte S, Lehert P. International validation of the CLAU-S quality-of-life questionnaire for use in patients with intermittent claudication. Pharmacoeconomics. 2001;19(6):667-77.
  13. Selke B, Marquis P, Lebrun T. [Socioeconomic and quality of life repercussions of arterial hypertension]. Drugs. 1998;56 Suppl 2:45-53.
  14. Marquis P, Fayol C, Joire JE, Leplege A. Psychometric properties of a specific quality of life questionnaire in angina pectoris patients. Qual Life Res. 1995;4(6):540-6.
  15. Marquis P, Fayol C, Joire JE. Clinical validation of a quality of life questionnaire in angina pectoris patients. Eur Heart J. 1995;16(11):1554-60.
  16. Marquis P, Fayol C, McCarthy C, Fiessinger JN. [Measurement of quality of life in intermittent claudication. Clinical validation of a questionnaire]. Presse Med. 1994;23(28):1288-92.
  1. Klassen AF, Cano SJ, Schwitzer JA, Baker SB, Carruthers A, Carruthers J, et al. Development and Psychometric Validation of the FACE-Q Skin, Lips, and Facial Rhytids Appearance Scales and Adverse Effects Checklists for Cosmetic Procedures. JAMA Dermatol. 2016;152(4):443-51.
  2. Klassen AF, Cano SJ, Pusic AL. Use of FACE-Q to Measure Quality of Life Following Aesthetic Facial Treatments. JAMA Facial Plast Surg. 2016;18(2):148-9.
  3. Klassen AF, Cano SJ, Pusic AL. FACE-Q Satisfaction with Appearance Scores from Close to 1000 Facial Aesthetic Patients. Plast Reconstr Surg. 2016;137(3):651e-2e.
  4. Klassen AF, Cano SJ, Alderman A, East C, Badia L, Baker SB, et al. Self-Report Scales to Measure Expectations and Appearance-Related Psychosocial Distress in Patients Seeking Cosmetic Treatments. Aesthet Surg J. 2016;36(9):1068-78.
  5. Pompilus F, Burgess SM, Hudgens S, Banderas B, Daniels S. Development and validation of a novel patient-reported treatment satisfaction measure for hyperfunctional facial lines: facial line satisfaction questionnaire. J Cosmet Dermatol. 2015;14(4):274-85.
  6. Schwitzer J, Klassen AF, Cano SJ, Pusic AL. Towards Evidence-Based Practice in Cosmetic Surgery Using the Q-Portfolio of Patient-Reported Outcome Measures Aesthetic Journal. 2014;1(7):28-32.
  7. Wildgoose P, Scott A, Pusic AL, Cano S, Klassen AF. Psychological screening measures for cosmetic plastic surgery patients: a systematic review. Aesthet Surg J. 2013;33(1):152-9.
  8. Pusic AL, Klassen AF, Scott AM, Cano SJ. Development and psychometric evaluation of the FACE-Q satisfaction with appearance scale: a new patient-reported outcome instrument for facial aesthetics patients. Clinics in plastic surgery. 2013;40(2):249-60.
  9. Pompilus F, Daniels S, Fitzgerald K, Evans C, Banderas B, Burgess SM. Development of a Patient-Reported Treatment Satisfaction Measure for Hyperfunctional Lines in the Upper Face. ISOQOL; Miami, USA, 2013.
  10. McCarthy CM, Cano SJ, Klassen AF, Scott A, Van Laeken N, Lennox PA, et al. The magnitude of effect of cosmetic breast augmentation on patient satisfaction and health-related quality of life. Plast Reconstr Surg. 2012;130(1):218-23.
  11. Pusic AL, Reavey PL, Klassen AF, Scott A, McCarthy C, Cano SJ. Measuring patient outcomes in breast augmentation: introducing the BREAST-Q Augmentation module. Clinics in plastic surgery. 2009;36(1):23-32, v.
  1. Harris SA, Lamping DL, Brown EA, Constantinovici N, Phillips M, Barnes G, et al. Clinical outcomes and quality of life in elderly patients on peritoneal dialysis versus hemodialysis. Peritoneal dialysis international : journal of the International Society for Peritoneal Dialysis. 2002;22(4):463-70.
  1. Taylor F, Reasner DS, Carson RT, Deal LS, Foley C, Iovin R, et al. Development of a Symptom-Based Patient-Reported Outcome Instrument for Functional Dyspepsia: A Preliminary Conceptual Model and an Evaluation of the Adequacy of Existing Instruments. Patient. 2016;9(5):409-18.
  2. Marquis P, Lasch KE, Delgado-Herrera L, Kothari S, Lembo A, Lademacher C, et al. Qualitative development of a patient-reported outcome symptom measure in diarrhea-predominant irritable bowel syndrome. Clin Transl Gastroenterol. 2014;5:e59.
  3. Markowitz JT, editor Coping with Challenges of a Dual Diagnosis (of Diabetes and Celiac Disease) – Counseling Strategies. Annual Meeting of the American Diabetes Association; 2013; Chicago, USA.
  4. Regnault A, Siliman G, Dubois D, Kerstens R, Marant C. Development of symptom indices using formative structural equation models: Application to the PAC-SYM questionnaire. International Society for Clinical Biostatistics; Montpellier, France, 2010.
  5. Regnault A, Siliman G, Dubois D, Kerstens R, Marant C. Development of symptom measures reflecting the relative impact of symptoms on Health-Related Quality of Life: Application to chronic constipation. ISOQOL; 2010; London, UK.
  6. Mear I, Conway K, Regnault A, Acquadro C. Similarities and Differences in the Expression of Symptoms Across Countries: The Translations of the PAGI-SYM 20. ISOQOL; 2010; London, UK.
  7. Lewis BE, Arbuckle R, Abetz L, Carson R, Pompilus F, Johnston J, et al. Development of pediatric irritable bowel syndrome with constipation measures: results of qualitative interviews with children and their primary caregivers. North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual meeting; New Orleans, USA, 2010.
  8. Marquis P, De La Loge C, Dubois D, McDermott A, Chassany O. Development and validation of the Patient Assessment of Constipation Quality of Life questionnaire. Scand J Gastroenterol. 2005;40(5):540-51.
  9. De La Loge C, Trudeau E, Marquis P, Revicki DA, Rentz AM, Stanghellini V, et al. Responsiveness and interpretation of a quality of life questionnaire specific to upper gastrointestinal disorders. Clin Gastroenterol Hepatol. 2004;2(9):778-86.
  10. Arnould B, Regnault A, Dubois D. Diagnosis of Upper Gastro-Intestinal Disorders: Comparing three Methods to Shorten a Predictive Symptom Checklist. European Society for Medical Decision Making 9th Biennial Conference; Rotterdam, The Netherlands, 2004.
  11. Arnould B, Regnault A, Dubois D. Using partial least squares (PLS) analysis to shorten a predictive symptom checklist for upper gastro-intestinal (UGI) disorders. ISOQOL symposium; Boston, USA, 2004.
  12. Marquis P, Marrel A, Jambon B. Quality of life in patients with stomas: the Montreux Study. Ostomy Wound Manage. 2003;49(2):48-55.
  13. Pigot F, Castinel A, Juguet F, Marrel A, Deroche C, Marquis P. [Quality of life, symptoms of dyschezia, and anatomy after correction of rectal motility disorder]. Gastroenterol Clin Biol. 2001;25(2):154-60.
  14. Levenstein S, Li Z, Almer S, Barbosa A, Marquis P, Moser G, et al. Cross-cultural variation in disease-related concerns among patients with inflammatory bowel disease. Am J Gastroenterol. 2001;96(6):1822-30.
  15. Blondel-Kucharski F, Chircop C, Marquis P, Cortot A, Baron F, Gendre JP, et al. Health-related quality of life in Crohn's disease: a prospective longitudinal study in 231 patients. Am J Gastroenterol. 2001;96(10):2915-20.
  16. Sacher-Huvelin S, Gournay J, Amouretti M, Marquis P, Bruley Des Varannes S, Galmiche JP. [Acid-sensitive esophagus: natural history and effect on the quality of life. Comparison with gastroesophageal reflux]. Gastroenterol Clin Biol. 2000;24(10):911-6.
  17. Raymond JM, Marquis P, Bechade D, Smith D, Mathiex Fortunet H, Poynard T, et al. [Assessment of quality of life of patients with gastroesophageal reflux. Elaboration and validation of a specific questionnaire]. Gastroenterol Clin Biol. 1999;23(1):32-9.
  18. Louis E, Marquis P, Nalet B. [How does one evaluate the severity of gastroesophageal reflux and what are the therapeutic objectives?]. Revue medicale de Bruxelles. 1999;20(2):A114-5.
  19. Enck P, Dubois D, Marquis P. Quality of life in patients with upper gastrointestinal symptoms: results from the Domestic/International Gastroenterology Surveillance Study (DIGEST). Scand J Gastroenterol Suppl. 1999;231:48-54.
  20. Chassany O, Marquis P, Scherrer B, Read NW, Finger T, Bergmann JF, et al. Validation of a specific quality of life questionnaire for functional digestive disorders. Gut. 1999;44(4):527-33.
  21. Yazdanpanah Y, Klein O, Gambiez L, Baron P, Desreumaux P, Marquis P, et al. Impact of surgery on quality of life in Crohn's disease. Am J Gastroenterol. 1997;92(10):1897-900.
  22. Colombel JF, Yazdanpanah Y, Laurent F, Houcke P, Delas N, Marquis P. [Quality of life in chronic inflammatory bowel diseases. Validation of a questionnaire and first French data]. Gastroenterol Clin Biol. 1996;20(12):1071-7.
  23. Rampal P, Martin C, Marquis P, Ware JE, Bonfils S. A quality of life study in five hundred and eighty-one duodenal ulcer patients. Maintenance versus intermittent treatment with nizatidine. Scand J Gastroenterol Suppl. 1994;206:44-51.
  24. Martin C, Marquis P, Bonfils S. A 'quality of life questionnaire' adapted to duodenal ulcer therapeutic trials. Scand J Gastroenterol Suppl. 1994;206:40-3.
  1. Simon A, Pompilus F, Querbes W, Wei A, Strzok S, Penz C, et al. Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations. The Patient - Patient-Centered Outcomes Research. 2018.
  2. Klassen AF, Kaur M, Breitkopf T, Thoma A, Cano S, Pusic A. Using the BODY-Q to Understand Impact of Weight Loss, Excess Skin and the Need for Body Contouring Following Bariatric Surgery. Plast Reconstr Surg. 2018.
  3. Simon A, Pompilus F, Querbes W, Penz C, Agarwal S, Strzok S, et al. A qualitative analysis of disease burden in patients with acute intermittent porphyria and recurrent attacks. ISPOR; Boston, MA, USA, 2017.
  4. Regnault A, Denoncourt RN, Strahs A, Agarwal S, Marquis P, Cano S. Measurement properties of the Rasch-built overall disability scale in patients with hereditary ATTR Amyloidosis with polyneuropathy. ISPOR; Boston, MA, USA, 2017.
  5. Klassen AF, Cano SJ, Kaur M, Breitkopf T, Pusic AL. Further psychometric validation of the BODY-Q: ability to detect change following bariatric surgery weight gain and loss. Health Qual Life Outcomes. 2017;15(1):227.
  6. Young-Hyman DL, Peterson CM, Fischer S, Markowitz JT, Muir AB, Laffel LM. Depressive Symptoms, Emotion Dysregulation, and Bulimic Symptoms in Youth With Type 1 Diabetes: Varying Interactions at Diagnosis and During Transition to Insulin Pump Therapy. J Diabetes Sci Technol. 2016;10(4):845-51.
  7. Hevelke LK, Albrecht C, Busse-Widmann P, Kranz J, Lange K, Markowitz JT, et al. [Prevalence of Disturbed Eating Behavior in Children and Adolescents with Type 1 Diabetes: Assessment and Comparison to Healthy Peers--Results of a Multicenter Questionnaire-based Study]. Psychother Psychosom Med Psychol. 2016;66(3-4):128-35.
  8. Grimaldi A, Penfornis A, Consoli S, Falissard B, Eymard E, Meunier J, et al. Supprimer les barrières à une gestion du diabète de type 2 efficace: résultats de l'utilisation de l'outil OPTIMA en pratique courante. Société Francophone du Diabète; Lyon, France, 2016.
  9. Beaney KE, Ward CE, Bappa DA, McGale N, Davies AK, Hirani SP, et al. A 19-SNP coronary heart disease gene score profile in subjects with type 2 diabetes: the coronary heart disease risk in type 2 diabetes (CoRDia study) study baseline characteristics. Cardiovascular diabetology. 2016;15(1):141.
  10. Sassmann H, Albrecht C, Busse-Widmann P, Hevelke LK, Kranz J, Markowitz JT, et al. Psychometric properties of the German version of the Diabetes Eating Problem Survey-Revised: additional benefit of disease-specific screening in adolescents with Type 1 diabetes. Diabet Med. 2015;32(12):1641-7.
  11. Regnault A, Burlina A, Cunningham A, Bettiol E, Moreau-Stucker F, Benmedjahed K, et al. Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires. Orphanet J Rare Dis. 2015;10:59.
  12. Rasbach LE, Volkening LK, Markowitz JT, Butler DA, Katz ML, Laffel LM. Youth and parent measures of self-efficacy for continuous glucose monitoring: survey psychometric properties. Diabetes Technol Ther. 2015;17(5):327-34.
  13. Markowitz JT, Volkening LK, Butler DA, Laffel LM. Youth-Perceived Burden of Type 1 Diabetes: Problem Areas in Diabetes Survey-Pediatric Version (PAID-Peds). J Diabetes Sci Technol. 2015;9(5):1080-5.
  14. Markowitz JT, Garvey KC, Laffel LM. Developmental changes in the roles of patients and families in type 1 diabetes management. Curr Diabetes Rev. 2015;11(4):231-8.
  15. Klassen A, Alderman A, Soldin M, Robson S, Kaur M, Cano S, et al. Development and psychometric validation of a PRO instrument for obese, bariatric and cosmetic body contouring patients: the BODY-Q. ISOQOL; 2015; Vancouver, Canada
  16. Davies AK, McGale N, Humphries SE, Hirani SP, Beaney KE, Bappa DA, et al. Effectiveness of a self-management intervention with personalised genetic and lifestyle-related risk information on coronary heart disease and diabetes-related risk in type 2 diabetes (CoRDia): study protocol for a randomised controlled trial. Trials. 2015;16:547.
  17. Bosch AM, Burlina A, Cunningham A, Bettiol E, Moreau-Stucker F, Koledova E, et al. Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries. Orphanet J Rare Dis. 2015;10:80.
  18. Rasbach LE, Volkening LK, Gaffney KC, Markowitz JT, Laffel LM. Evaluation of a New Youth and Parent Measure to Assess Self-Efficacy for Continuous Glucose Monitoring (CGM) in Youth with Type 1 Diabetes (T1D). Annual Meeting of the American Diabetes Association; San Francisco, USA, 2014.
  19. Markowitz JT, Volkening LK, Laffel LM. Care utilization in a pediatric diabetes clinic: cancellations, parental attendance, and mental health appointments. J Pediatr. 2014;164(6):1384-9.
  20. Markowitz JT, Cousineau T, Franko DL, Schultz AT, Trant M, Rodgers R, et al. Text messaging intervention for teens and young adults with diabetes. J Diabetes Sci Technol. 2014;8(5):1029-34.
  21. Markowitz JT, Christian AJ, Cartaya JB, Laffel LM. Teen and Parent Perceptions of the Transition Process from Pediatric to Adult Care in Type 1 Diabetes (T1D): A Qualitative Study. Annual Meeting of the American Diabetes Association; San Francisco, USA, 2014.
  22. Markowitz JT, editor Depression Screening in Pediatric Type 1 Diabetes (T1D); Positive Screening Scores and Parental Responses. Annual Meeting of the Society for Behavioral Medicine; 2014; Philadelphia, USA.
  23. Harrington KR, Barstow MB, Volkening LK, Markowitz JT, Butler DA, Laffel LM. Reexamining Fear of Hypoglycemia (FOH) Survey in Contemporary Youth with Type 1 Diabetes (T1D) and their Parents. Annual Meeting of the American Diabetes Association; San Francisco, USA, 2014.
  24. Goebel-Fabbri A, Markowitz JT, Zrebiec J, Butler A, DiVincenzo R, Ritholz MD. Who are the Patients Utilizing Behavioral Mental Health (MH) Services at a Comprehensive Diabetes Center? Annual Meeting of the American Diabetes Association; San Francisco, USA, 2014.
  25. Bosch AM, Burlina A, Cunningham A, Bettiol EO, Moreau-Stucker F, Benmedjahed K, et al. Psychometric Validation of the Newly Developed Phenylketonuria- Quality of Life (Pku-Qol) Questionnaires Assessing the Impact of Phenylketonuria and Its Treatment On Patients' Quality of Life. ISPOR; Amsterdam, The Netherlands, 2014.
  26. Bosch A, Burlina A, Cunningham A, Bettiol E, Moreau-Stucker F, Benmedjahed K, et al. Psychometric validation of questionnaires assessing the impact of phenylketonuria on patients and caregivers’ quality of life. ISPOR; Amsterdam, The Netherlands, 2014.
  27. Bosch A, Burlina A, Cunningham A, Bettiol E, Moreau-Stucker F, Benmedjahed K, et al. Development and validation of disease-specific quality of life questionnaires for individuals with phenylketonuria and their parents. Society for the Study of Inborn Errors of Metabolism (SSIEM) Annual Symposium; Innsbruck, Austria, 2014.
  28. Markowitz JT, Volkening LK, Laffel LMB. Development of a Parent Proxy Diabetes-Specific Transition Readiness Questionnaire. Annual Meeting of the American Diabetes Association; Chicago, USA, 2013.
  29. Markowitz JT, Harrington KR, Laffel LM. Technology to optimize pediatric diabetes management and outcomes. Curr Diab Rep. 2013;13(6):877-85.
  30. Markowitz JT, Butler DA, Volkening LK, Laffel LM. Youth-Perceived Burden of Type 1 Diabetes (T1D): Problem Areas in Diabetes – Pediatric Survey (PAID-PEDS). Annual Meeting of the American Diabetes Association; Chicago, USA, 2013.
  31. Markowitz JT, Alleyn CA, Phillips R, Muir A, Young-Hyman D, Laffel LM. Disordered eating behaviors in youth with type 1 diabetes: prospective pilot assessment following initiation of insulin pump therapy. Diabetes Technol Ther. 2013;15(5):428-33.
  32. Markowitz JT, editor Coping with Challenges of a Dual Diagnosis (of Diabetes and Celiac Disease) – Counseling Strategies. Annual Meeting of the American Diabetes Association; 2013; Chicago, USA.
  33. Markowitz JT, editor Beyond Medical Management: Psychosocial Challenges in Youth with Diabetes. School Nurse Training Program, Joslin Diabetes Center; 2013; Boston, USA.
  34. Harrington KR, Markowitz JT, Volkening LK, Katz ML, Laffel LMB. Impact of Mental Health (MH) on Fear of Hypoglycemia (FOH), Glycemic Control, and Quality of Life (QOL) in Youth with Type 1 Diabetes (T1D). Annual Meeting of the American Diabetes Association; Chicago, USA, 2013.
  35. Markowitz JT, Volkening LK, Butler DA, Antisdel-Lomaglio J, Anderson BJ, Laffel LM. Re-examining a measure of diabetes-related burden in parents of young people with Type 1 diabetes: the Problem Areas in Diabetes Survey - Parent Revised version (PAID-PR). Diabet Med. 2012;29(4):526-30.
  36. Markowitz JT, Pratt K, Aggarwal J, Volkening LK, Laffel LM. Psychosocial correlates of continuous glucose monitoring use in youth and adults with type 1 diabetes and parents of youth. Diabetes Technol Ther. 2012;14(6):523-6.
  37. Markowitz JT, Mickey SS, Fisher EA, Haynie D, Nansel TR, Mehta SN, et al. Implications of Family History (FHx) of Diabetes (DM) for Youth with Type 1 Diabetes (T1D). Annual Meeting of the American Diabetes Association; Philadelphia, USA, 2012.
  38. Markowitz JT, Laffel LM. Transitions in care: support group for young adults with Type 1 diabetes. Diabet Med. 2012;29(4):522-5.
  39. Markowitz JT, Laffel LM. Frequency of Missed Clinic Visits and Family Member Visit Attendance by Provider in a Pediatric, Adolescent, and Young Adult Diabetes Clinic. Annual Meeting of the American Diabetes Association; Philadelphia, USA, 2012.
  40. Markowitz JT, Butler DA, Laffel LM. Utilization of mental health care in a pediatric diabetes clinic. Annual Meeting of the American Diabetes Association; Philadelphia, USA, 2012.
  41. Markowitz JT, editor Psychosocial Challenges of Diabetes in Young Adults. Department of Social Work Grand Rounds, Beth Israel Deaconess Medical Center; 2012; Boston, USA.
  42. Markowitz JT, editor Building Family Support: Case Examples of Type 1 Diabetes Treatment Issues. CME program, Joslin Diabetes Center; 2012; Boston, USA.
  43. Markowitz JT, editor Clinical Issues in the Behavioral Management of Diabetes. Training for psychology interns/post-doctoral fellows, Massachusetts General Hospital; 2012; Boston, USA.
  44. Markowitz JT, editor Troubleshooting Challenging Situations. School Nurse Training Program, Joslin Diabetes Center; 2012; Boston, USA.
  45. Garvey KC, Markowitz JT, Laffel LM. Transition to adult care for youth with type 1 diabetes. Curr Diab Rep. 2012;12(5):533-41.
  46. Gagnon C, Aime A, Belanger C, Markowitz JT. Comorbid diabetes and eating disorders in adult patients: assessment and considerations for treatment. Diabetes Educ. 2012;38(4):537-42.
  47. Young-Hyman D, Laffel LM, Markowitz JT, Norman J, Muir A, Lindsley K. Evaluating Eating Disorder Risk (EDR) in T1D Youth Transitioning to Insulin Pump (CSII) Therapy (Rx). Annual Meeting of the American Diabetes Association; San Diego, USA, 2011.
  48. Young-Hyman D, Laffel LM, Markowitz JT, Norman J, Muir A, Lindsley K. Evaluating Eating Disorder Risk at Time of Teen T1D Diagnosis (DX). Annual Meeting of the American Diabetes Association; San Diego, USA, 2011.
  49. Markowitz JT, Laffel LM, Volkening LK, Anderson BJ, Nansel TR, Weissberg-Benchell J, et al. Validation of an abbreviated adherence measure for young people with Type 1 diabetes. Diabet Med. 2011;28(9):1113-7.
  50. Markowitz JT, Alleyn CA, Phillips R, Muir A, Young-Hyman D, Laffel LMB. Disordered eating behaviors in youth with type 1 diabetes initiating pump therapy: baseline and after 6 weeks. Annual Meeting of the International Society for Pediatric and Adolescent Diabetes; Miami, USA2011.
  51. Markowitz JT, editor Special Considerations in Caring for Young Adults with Type 1 Diabetes. Clinic Staff Education Forum, Joslin Diabetes Center; 2011; Boston, USA.
  52. Young-Hyman D, Laffel LM, Muir A, Davis C, Alleyn C, Markowitz JT. Baseline psychological and weight characteristics: The Treatment and Weight Concerns (TaWC) cohort. Diabetes 2010;59((Suppl 1)):A701-2.
  53. Markowitz JT, Volkening LK, Laffel LMB, Anderson BJ, Nansel TR, Weissberg-Benchell J, et al. Validation of an Abbreviated Adherence Measure in Youth with Type 1 Diabetes (T1D). Annual Meeting of the American Diabetes Association; Orlando, USA, 2010.
  54. Markowitz JT, Butler DA, Volkening LK, Antisdel JE, Anderson BJ, Laffel LM. Brief screening tool for disordered eating in diabetes: internal consistency and external validity in a contemporary sample of pediatric patients with type 1 diabetes. Diabetes Care. 2010;33(3):495-500.
  55. Markowitz JT, editor Identifying Disordered Eating Behaviors in Pediatric Patients with Type 1 Diabetes. CME program, Joslin Diabetes Center; 2010; Boston, USA.
  56. Butler DA, Volkening LK, Lochrie AS, Markowitz JT, Murphy HG, Laffel LMB, et al. Diabetes-Specific Management Goals Selected by Families to Optimize Glycemic Control During Childhood Type 1 Diabetes (T1D). Annual Meeting of the American Diabetes Association; Orlando, USA, 2010.
  57. Markowitz JT, Volkening LK, Butler DA, Anderson BJ, Laffel LMB. A Brief Screening Measure of Disordered Eating in Diabetes. Annual Meeting of the American Diabetes Association; New Orleans, USA, 2009.
  58. Markowitz JT, Lowe MR, Volkening LK, Laffel LM. Self-reported history of overweight and its relationship to disordered eating in adolescent girls with Type 1 diabetes. Diabet Med. 2009;26(11):1165-71.
  59. Thomas G, Markowitz JT, Tappe K, Chernyak Y, Ochner C, Butryn M, et al. Telephone-based weight loss maintenance interventions for patients referred from primary care clinics. Annual Meeting of The Obesity Society; Phoenix, USA, 2008.
  60. Sarwer D, Thomas G, Markowitz JT, Eisenberg M, Sywulak L. Medical weight management prior to bariatric surgery: preliminary results. Annual Meeting of The Obesity Society; Phoenix, USA, 2008.
  61. Markowitz JT, editor Evidence-Based Treatment of Eating Disorders and Obesity. Staff training, United Counseling Services; 2007; Bennington, VT, USA.
  62. Arnould B, Benmedjahed K, Consoli S, Gueron B, Guillemin I, Meunier J, et al. Development, scoring and initial validation of a self-administered questionnaire for diabetic profiling based on patient attitude towards insulin. ISOQOL Budapest, Hungary, 2007.
  63. Sarwer DB, Allison KC, Gibbons LM, Markowitz JT, Nelson DB. Pregnancy and obesity: a review and agenda for future research. J Womens Health (Larchmt). 2006;15(6):720-33.
  64. Markowitz JT, Tappe K, Brody D, Lowe M. Predictors of participation in a study of weight loss maintenance in African American women. Annual Meeting of the North American Association for the Study of Obesity; Boston, MA, 2006.
  65. Markowitz JT, editor Treatment of Obesity and Eating Disorders. Drexel University Student Counseling Center Staff; 2006; Philadelphia, USA.
  1. Browne JP, Hopkins C, Slack R, Cano SJ. The Sino-Nasal Outcome Test (SNOT): can we make it more clinically meaningful? Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery. 2007;136(5):736-41.
  2. Berdeaux G, Hervie C, Smajda C, Marquis P. Parental quality of life and recurrent ENT infections in their children: development of a questionnaire. Rhinitis Survey Group. Qual Life Res. 1998;7(6):501-12.
  1. Humphrey L, Arbuckle R, Moldwin R, Nordling J, van de Merwe JP, Meunier J, et al. The bladder pain/interstitial cystitis symptom score: development, validation, and identification of a cut score. Eur Urol. 2012;61(2):271-9.
  2. Humphrey L, Arbuckle R, Moldwin R, Nordling J, van de Merwe JP, Meunier J, et al. Reply from Authors re: Antonella Giannantoni. Patient Reported Outcomes in Bladder Pain Syndrome: Qui Auget Dolorem, Auget et Scientiam (As Pain Increases, So Increases Knowledge). Eur Urol. 2012;61(2):282-3.
  3. DiBenedetti DB, Gondek K, Sagnier PP, Kubin M, Marquis P, Keininger D, et al. The treatment satisfaction scale: a multidimensional instrument for the assessment of treatment satisfaction for erectile dysfunction patients and their partners. Eur Urol. 2005;48(3):503-11.
  4. Marquis P. Quality of life assessment in neurogenic bladder. In: Corcos J, Schick E, editors. Textbook of Neurogenic Bladder: Adults and Children. London: Martin Dunitz Ltd; 2004. p. 365-72.
  5. Marquis P, Marrel A. Reproducibility and clinical and concurrent validity of the MSF-4: a four-item male sexual function questionnaire for patients with benign prostatic hyperplasia. Value Health. 2001;4(4):335-43.
  6. Wool C, Cerutti R, Marquis P, Cialdella P, Hervie C. Psychometric validation of two Italian quality of life questionnaires in menopausal women. Maturitas. 2000;35(2):129-42.
  7. Richard F, Haab F, Gattegno B, Amarenco G, Ballanger P, Buzelin J-M, et al. Development and validation of a new specific questionnaire to assess women health related quality of life in urinary incontinence. XIV European Association Urology; Stockholm, Sweden, 1999.
  8. Patrick DL, Martin ML, Bushnell DM, Marquis P, Andrejasich CM, Buesching DP. Cultural adaptation of a quality-of-life measure for urinary incontinence. Eur Urol. 1999;36(5):427-35.
  9. Marquis P, Lademacher C, Rozenbaum H. Once a week transdermal estrogen -quality of life improvement in long-term replacement therapy: newest findings. In: Paoletti R, Crosignani PG, Kenemans P, Samsioe G, Soma M, Jackson AS, editors. Women’s Health and Menopause: Risk Reduction Strategies -Improved Quality of Health: Kluwer Academic Publishers; 1999. p. 183-8.
  10. Amarenco G, Marquis P, McCarthy C, Richard F. [Quality of life of women with stress urinary incontinence with or without pollakiuria]. Presse Med. 1998;27(1):5-10.
  11. Amarenco G, Marquis P, Jacquetin B, Richard F. Evaluation de la perturbation de la qualité de vie au cours des hyperactivités vésicales. Evaluation de l’hyperactivité. Paris: Elsevier; 1998. p. 61-6.
  12. Marquis P, Amarenco G, Sapede C, Josserand F, McCarthy C, Zerbib M, et al. [Elaboration and validation of a specific quality of life questionnaire for urination urgency in women]. Prog Urol. 1997;7(1):56-63.
  13. Calais Da Silva F, Marquis P, Deschaseaux P, Gineste JL, Cauquil J, Patrick DL. Relative importance of sexuality and quality of life in patients with prostatic symptoms. Results of an international study. Eur Urol. 1997;31(3):272-80.
  14. Amarenco G, Jacquetin B, Marquis P, Richard F. Development and validation of a disease specific quality of life questionnaire for urinary urge incontinence. International Continence Society; Sydney, Australia, 1995.
  1. Cleanthous S, Regnault A, Schneider M, Gordon C, Bartlett S, Cano S, et al. Measuring what matters to lupus patients: translating patient views into novel patient-reported outcomes. EULAR; Amsterdam, The Netherlands, 2018.
  2. Cleanthous S, Isenberg DA, Newman SP, Cano SJ. Patient Uncertainty Questionnaire-Rheumatology (PUQ-R): development and validation of a new patient-reported outcome instrument for systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA) in a mixed methods study. Health and Quality of Life Outcomes. 2016;14(1):33.
  3. Strand V, Merrill J, Nikai E, Kilgallen B, Regnault A, Gordon C. Sustained Improvements in Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus Following Epratuzumab Treatment: Results from a Phase IIb Study and its Open-Label Extension. ISPOR; Montreal, Canada, 2014.
  4. Strand V, Merrill J, Nikai E, Kilgallen B, Regnault A, Gordon C. Sustained Improvements in Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus Following Epratuzumab Treatment: Results from a Phase IIb Study and its Open-Label Extension. European Lupus Meeting; Athens, Greece, 2014.
  5. Cleanthous S, Cano S, Isenberg D, Newman S. Is patient uncertainty associated with outcomes in Systemic Lupus Erythematosus? Rheumatology; Liverpool, UK, 2014.
  6. Strand V, Merrill J, Nikai E, Kilgallen B, Regnault A, Gordon C. Sustained Improvements in Health-related Quality of LiEpratuzumab treament: Results from EMBLEM™ and its Open-Label Extension Study. American College of Rheumatology (ACR); San Diego, USA, 2013.
  7. Cleanthous S, Newman SP, Shipley M, Isenberg DA, Cano SJ. What constitutes uncertainty in systemic lupus erythematosus and rheumatoid arthritis? Psychology & Health. 2013;28(2):171-88.
  8. Cleanthous S, Newman SP, Isenberg DA, Cano S. Development and validation of a new patient reported instrument of uncertainty in systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA). ISOQOL; 2013; Miami, USA
  9. Cleanthous S, Tyagi M, Isenberg DA, Newman SP. What do we know about self-reported fatigue in systemic lupus erythematosus? . European League Against Rheumatism Annual Congress; Berlin, Germany, 2012.
  10. Cleanthous S, Tyagi M, Isenberg D, Newman S. What do we know about self-reported fatigue in systemic lupus erythematosus? Lupus. 2012;21:465-76.
  11. Cleanthous S, Newman S, Shipley M, Ehrenstein MR, Isenberg D, Cano S. Uncertainty in Systemic Lupus Erythematosus (SLE): Development of a Conceptual Model. ISOQOL; London, UK, 2010.
  12. Cleanthous S, Cooke D, Hirani S, Kirk A, Isenberg A, Newman S. Systemic Lupus Erythematosus: Concordance and Accuracy of Patient and Physician Expectations of Physical Functioning. British Society for Rheumatology Annual Conference; Glasgow, UK, 2009.
  13. Cleanthous S, Cooke D, Kirk A, Isenberg A, Newman S. Illness Perceptions Questionnaire: An Investigation of the Stability and Structure of Illness Representations in Systemic Lupus Erythematosus. BPS Division of Health Psychology Annual Conference; Bath, UK, 2008.
  14. Cleanthous S, Cooke D, Kirk A, Isenberg DA, Newman SP. Illness Perceptions Questionnaire: An Investigation of the Stability and Structure of Illness Representations in Systemic Lupus Erythematosus. The Pan-Hellenic Conference of Clinical and Health Psychology; 2007; Thessaloniki, Greece.
  1. Markowitz JT, Knoble NB, Arnould B, Wu AW. Development of a contemporary symptom diary for patients with HIV. Annual Meeting of HIV; Glasgow, UK, 2016.
  2. Diez Domingo J, Patrzalek M, Cantarutti L, Arnould B, Meunier J, Soriano-Gabarro M, et al. The impact of childhood acute rotavirus gastroenteritis on the parents' quality of life: prospective observational study in European primary care medical practices. BMC Pediatr. 2012;12:58.
  3. Reygrobellet C, Viala-Danten M, Meunier J, Weber F, Nguyen VH. Perception and acceptance of intradermal influenza vaccination: Patient reported outcomes from phase 3 clinical trials. Hum Vaccin. 2010;6(4):336-45.
  4. Regnault A, Marfatia S, Louie M, Mear I, Meunier J, Viala-Danten M. Satisfactory cross-cultural validity of the ACTG symptom distress module in HIV-1-infected antiretroviral-naive patients. Clin Trials. 2009;6(6):574-84.
  5. Meunier J, Reygrobellet C, Weber F, Nguyen VH, Viala-Danten M. Perception and acceptance of intradermal influenza vaccine measured by the Vaccinees' Perception of Injection (VAPI©) questionnaire. ISPOR; Paris, France, 2009.
  6. Viala-Danten M, Meunier J, Arnould B. Development and psychometric validation of a new questionnaire measuring the impact of child gastroenteritis on parents. ISPOR; Athens, Greece, 2008.
  7. Regnault A, Marfatia S, Louie M, Viala-Danten M. Assessment of the Cross-Cultural Validity of the ACTG Symptoms Distress Module in an International HIV Clinical Trial. ISPOR; Toronto, Canada, 2008.
  1. Costa P, Perrouin-Verbe B, Colvez A, Didier J, Marquis P, Marrel A, et al. Quality of life in spinal cord injury patients with urinary difficulties. Development and validation of qualiveen. Eur Urol. 2001;39(1):107-13.
  1. Barbic SP, Cano SJ, Mathias S. The Problem of Patient-Centred Outcome Measurement in Psychiatry: why metrology hasn’t mattered and why it should. Journal of Physics: Conference Series. 2018;1044(1):012069.
  2. Hendriks AAJ, Smith SC, Chrysanthaki T, Cano SJ, Black N. DEMQOL and DEMQOL-Proxy: a Rasch analysis. Health Qual Life Outcomes. 2017;15(1):164.
  3. Young-Hyman DL, Peterson CM, Fischer S, Markowitz JT, Muir AB, Laffel LM. Depressive Symptoms, Emotion Dysregulation, and Bulimic Symptoms in Youth With Type 1 Diabetes: Varying Interactions at Diagnosis and During Transition to Insulin Pump Therapy. J Diabetes Sci Technol. 2016;10(4):845-51.
  4. Rofail D, Regnault A, le Scouiller S, Lambert J, Zarit SH. Assessing the impact on caregivers of patients with schizophrenia: psychometric validation of the Schizophrenia Caregiver Questionnaire (SCQ). BMC Psychiatry. 2016;16:245.
  5. Rofail D, Regnault A, le Scouiller S, Berardo CG, Umbricht D, Fitzpatrick R. Health-related quality of life in patients with prominent negative symptoms: results from a multicenter randomized Phase II trial on bitopertin. Qual Life Res. 2016;25(1):201-11.
  6. Le Scouiller S, Edgar C, Rylands A, Giroudet C, Regnault A, Zarit S, et al. Cross-cultural adaptation of the Zarit Caregiver Interview for Alzheimer's disease (ZCI-AD) and the Caregiver Global Impression Scales in 13 languages. ISPOR; Vienna, Austria, 2016.
  7. Barbic SP, Cano SJ. The application of Rasch measurement theory to psychiatric clinical outcomes research: Commentary on ... Screening for depression in primary care. BJPsych Bull. 2016;40(5):243-4.
  8. Smith SC, Hendriks AAJ, Chrysanthaki T, Cano S, Black NA. Improving the measurement of HRQL in dementia: a Rasch measurement theory approach. ISOQOL; 2015; Vancouver, Canada
  9. Smith SC, Hendriks AAJ, Chrysanthaki T, Cano S, Black N. How can we interpret proxy reports of HRQL when it is no longer possible to obtain a self-report from people with dementia? ISOQOL; 2015; Vancouver, Canada
  10. Rofail D, Acquadro C, Izquierdo C, Regnault A, Zarit SH. Cross-cultural adaptation of the Schizophrenia Caregiver Questionnaire (SCQ) and the Caregiver Global Impression (CaGI) Scales in 11 languages. Health Qual Life Outcomes. 2015;13:76.
  11. Pompilus F, Lindberg-Springs S, Seoane E. A Review of Clinical Outcomes Assessments Used in FDA Approved Drug Labels for Mental Health Conditions. ISOQOL; Philadelphia, USA, 2015.
  12. McGale N, McArdle S, Gaffney P. The effectiveness of a combined exercise and internet delivered CBT intervention for young men’s mental health. British Psychological Society Division of Health Psychology Annual Conference; London, UK, 2015.
  13. Rofail D, Regnault A, le Scoullier S, Galani Berardo C, Umbricht D, Fitzpatrick R. Health-related quality of life in people with prominent negative symptoms: results form a multi-center randomised phase II trial on bitopertin. American Psychiatric Association 167th Annual Meeting; New York, NY, USA, 2014.
  14. Posner HB, Cano S, Carrillo MC, Selnes O, Stern Y, Thomas RG, et al. Establishing the psychometric underpinning of cognition measures for clinical trials of Alzheimer's disease and its precursors: a new approach. Alzheimer's & dementia. 2013;9(1 Suppl):S56-60.
  15. Supina D, Shields AL, Stokes J, Taylor F, Pompilus F, Delbecque L, et al. A Conceptual Model for Binge Eating Disorder Based on Literature Review, Expert Insights, and Patient Interviews. Eating Disorders Research Society; Porto, Portugal, 2012.
  16. McArdle S, McGale N, Gaffney P. A Qualitative Exploration of Men's Experiences of an Integrated Exercise/CBT Mental Health Promotion Programme. International Journal of Men's Health. 2012;11(3):240-57.
  17. McGale N, McArdle S, Gaffney P. Exploring the effectiveness of an integrated exercise/CBT intervention for young men's mental health. British journal of health psychology. 2011;16(3):457-71.
  18. McArdle S, McGale N, Gaffney P. Developing an integrated exercise/ CBT interventions for young men’s mental health: Steps in the process and process evaluations 13th European Congress of Sport Psychology: Human Performance, well-being and health; Madeira Islands, Portugal, 2011.
  19. Gaffney P, McGale N, McArdle S. Football, Life & Death: Can the beautiful game help us when addressing mental health issues in young people? British Psychological Society Northern Ireland Branch Annual Conference; Northern Ireland, UK, 2011.
  1. Bell JA, Pompilus F, Strzok S, Galaznik A, Scipione F, Fram RJ, et al. A pragmatic patient-reported outcome strategy for rare disease clinical trials: Application of the EORTC Item Library to Myelodysplastic Syndromes. ISOQOL; 2018; Dublin, Ireland.
  2. Lee EH, Klassen AF, Cano SJ, Nehal KS, Pusic AL. FACE-Q Skin Cancer Module for Measuring Patient-Reported Outcomes Following Facial Skin Cancer Surgery. The British journal of dermatology. 2018.
  3. Karagiannis T, Marquis P, Petersen J, Meyers OI, Chui SY, Campbell AK, et al. Understanding patients’ ability to function in order to inform clinical benefit in oncology studies. ISPOR; Glasgow, UK, 2017.
  4. Karagiannis T, Marquis P, Petersen J, Meyers O, Chui SY, Campbell AK, et al. Beyond survival and tumor progression: Assessing patients' (pts') function to further define clinical benefit in oncology studies. American Societey of Clinical Oncology; Chicago, ILL, USA,2017.
  5. Fuzesi S, Cano SJ, Klassen AF, Atisha D, Pusic AL. Validation of the electronic version of the BREAST-Q in the army of women study. Breast. 2017;33:44-9.
  6. Bell JA, Pompilus F, Galaznik A, Strzok S, Bejar R, Fram RJ, et al. Enhancing the Content of the EORTC QLQ-C30 to Maximize the Detection of Treatment Benefit in Hematological Stem Cell Disorders Using the EORTC Item Library. American Society of Hematology annual meeting; Atlanta, GA, USA, 2017.
  7. Bell JA, Galaznik A, Pompilus F, Strzok S, Fram RJ, Faller DV, et al. Patient Perspectives on Symptom Experience and Impact on Health-Related Quality of Life in Higher-Risk Myelodysplastic Syndromes, Chronic Myelomonocytic Leukemia and Low-Blast Acute Myeloid Leukemia. American Society of Hematology annual meeting; Atlanta, GA, USA, 2017.
  8. Robinson DJ, Esseltine DL, Regnault A, Meunier J, Liu K, van De Velde H. The influence of baseline characteristics and disease stage on health-related quality of life in multiple myeloma: findings from six randomized controlled trials. Br J Haematol. 2016;174(3):368-81.
  9. Lee EH, Klassen AF, Lawson JL, Cano SJ, Scott AM, Pusic AL. Patient experiences and outcomes following facial skin cancer surgery: A qualitative study. Australas J Dermatol. 2016;57(3):e100-4.
  10. Eek D, Krohe M, Mazar I, Horsfield A, Pompilus F, Friebe R, et al. Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature. Patient Prefer Adherence. 2016;10:1609-21.
  11. Yaworsky A, Ojo O, Foley C, Bonthapally V, Ma E, Norquist J, et al. Development and Content Validity Testing of the PROs of Fatigue in Cancer (PROOF-C) Symptom Severity Assessment. ISOQOL; Philadelphia, USA, 2015.
  12. Regnault A, Ferrer L, Dinet J, Gabriel S, Pavel ME, Ruszniewski PB, et al. Health-Related Quality of Life in CLARINET, a phase III Trial of Lanreotide Autogel 120mg in Patients with Non-Functioning Entero-Pancreatic neuroendocrine Tumour: Analytical Challenges and Statistical Solutions. ISOQOL; Vancouver, Canada, 2015.
  13. Klassen AF, Rosenberg-Yunger ZR, D'Agostino NM, Cano SJ, Barr R, Syed I, et al. The development of scales to measure childhood cancer survivors' readiness for transition to long-term follow-up care as adults. Health expectations : an international journal of public participation in health care and health policy. 2015;18(6):1941-55.
  14. Klassen AF, Cano SJ, Sinha R, Shahbaz A, Klaassen R, Dix D. Is the Give Youth a Voice questionnaire an appropriate measure of teen-centred care in paediatric oncology: a Rasch measurement theory analysis. Health expectations : an international journal of public participation in health care and health policy. 2015;18(5):1686-97.
  15. Taylor F, Mahmoud D, Hudgens S, Pompilus F, Hwang S, Komrokji R, et al. Health-Related Quality of Life and Productivity Impact of Myelodysplastic Syndromes (MDS): The Patients Perspective. International Symposium on Myelodysplastic Syndromes Berlin, Germany, 2013.
  16. Socinski MA, Butts CA, Mitchell P, Thatcher N, Scagliotti G, Robinet G, et al. Exploration of patient health status as measured by the EQ-5D questionnaire alongside the START trial of tecemotide (L-BLP25) in NSCLC. World Conference on Lung Cancer; Sydney, Australia, 2013.
  17. Pusic AL, Cemal Y, Albornoz C, Klassen A, Cano S, Sulimanoff I, et al. Quality of life among breast cancer patients with lymphedema: a systematic review of patient-reported outcome instruments and outcomes. Journal of cancer survivorship : research and practice. 2013;7(1):83-92.
  18. Lee EH, Klassen AF, Nehal KS, Cano SJ, Waters J, Pusic AL. A systematic review of patient-reported outcome instruments of nonmelanoma skin cancer in the dermatologic population. Journal of the American Academy of Dermatology. 2013;69(2):e59-67.
  19. Lee EH, Klassen A, Lawson JL, Cano SJ, Scott AM, Nehal KS, et al. A qualitative study to develop a conceptual framework to understand the health concerns of patients who undergo facial surgery for skin cancer. ISOQOL; Miami, FL, USA, 2013.
  20. Lawson JL, Scott AM, Lee EH, Matros E, Albornoz CR, Price AN, et al. Quality of life and the impact of altered facial appearance in head and neck cancer patient populations: a qualitative study. ISOQOL; 2013; Miami, FL, USA.
  21. Hoyt MA, Cano SJ, Saigal CS, Stanton AL. Health-related quality of life in young men with testicular cancer: validation of the Cancer Assessment for Young Adults (CAYA). Journal of cancer survivorship : research and practice. 2013;7(4):630-40.
  22. Albornoz CR, Pusic AL, Reavey P, Scott AM, Klassen AF, Cano SJ, et al. Measuring health-related quality of life outcomes in head and neck reconstruction. Clinics in plastic surgery. 2013;40(2):341-9.
  23. Scott AM, Ho AL, Klassen AF, Cano S, VanLaeken NY, Cordeiro P, et al. Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: Comparison of autologous and non-autologous breast reconstruction. American Society of Clinical Oncology; Chicago, IL, USA 2012.
  24. Scott AM, Ho AL, Klassen A, Cano S, VanLaeken N, Cordeiro P, et al. Patient-reported satisfaction with reconstructed breasts in the long-term survivorship period: comparison of autologous and non-autologous breast reconstruction. ISOQOL; 2012; Budapest, Hungary
  25. Pusic AL, Klassen AF, Scott AM, Cano SJ. Measuring and managing patient expectation for breast reconstruction: a new preoperative patient assessment tool. Appearance Matters 5; 2012; Bristol, UK
  26. Pusic A, Klassen A, Scott AM, Cano S, Shouery M, Basch EM. Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction. American Society of Clinical Oncology; 2012; Chicago, IL, USA
  27. Pusic A, Cano S, Klassen A, Scott AM, Shouery M, Basch E, et al. Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction. ISOQOL; Budapest, Hungary, 2012.
  28. Price AN, Scott AM, Klassen A, Cano S, Mehrara BJ, Disa JJ, et al. Patient-reported satisfaction with psychosocial and sexual well-being and the nipple areola complex: comparison of preservation and reconstruction. ISOQOL; Budapest, Hungary, 2012.
  29. Lasch KE, Ganguli A, Bonthapally V, Pompilus F, Delbecque L, Fitzgerald K, et al. Development of a patient-reported outcome instrument in brain metastases: the Brain Metastases Symptom and Impact Questionnaire (BASIQ). IPSOR 2012; Washington DC, USA.
  30. Lasch KE, Fitzgerald K, Ganguli A, Bonthapally V, Pompilus F, Delbecque L, et al. Using primary patient data to identify the symptoms of brain metastases to develop a patient-reported outcome measure. J Clin Oncol 2012;30:e12515.
  31. Ho AL, Klassen A, Cano S, Scott AM, Pusic A. Optimizing satisfaction in breast reconstruction: the importance of the preoperative information and patient-physician communication. ISOQOL; Budapest, Hungary, 2012.
  32. Gilet H, Regnault A. Analysis of time to patient-reported outcome meaningful change: illustration from a clinical trial of catumaxomab in patients with malignant ascites. International Society for Clinical Biostatistics (ISCB) 33rd Annual Conference; Bergen, Norway, 2012.
  33. Fitzgerald K, Ganguli A, Bonthapally V, Pompilus F, Delbecque L, Lasch KE, et al. Review of the content validity of the patient-reported outcome measures used in patients with brain metastases. ISPOR; Washington DC, USA, 2012.
  34. Delforge M, Dhawan R, Robinson DJ, Meunier J, Regnault A, Esseltine DL, et al. Health-related quality of life in elderly, newly diagnosed multiple myeloma patients treated with VMP vs. MP: results from the VISTA trial. Eur J Haematol. 2012;89(1):16-27.
  35. Albornoz CR, Matros M, Pusic A, Klassen A, Cano S, McCarthy C, et al. Breast reconstruction and radiation: an analysis of quality of life and satisfaction among patients undergoing implant reconstruction. ISOQOL; 2012; Budapest, Hungary.
  36. Scott AM, Klassen AF, Pusic AL, Cano S, Cordeiro PG, Morrow M, et al. Adaptation of existing PRO measures for use in additional patient populations: The BREAST-Q© BCT Module. ISOQOL; 2011; Denver, CO, USA.
  37. Matros E, Albornoz CR, Reavey PL, Cano SJ, Klassen AF, Pusic AL. Missing elements in current head and neck patient reported outcome measures. ISOQOL; 2011; Denver, CO, USA.
  38. Gilet H, Bredart A, Regnault A, Bhandary D, Parasuraman B. An evaluation of statistical methods used to analyse patient-reported outcomes (PRO) data in published metastatic cancer studies. ISPOR; Madrid, Spain, 2011.
  39. Snell LJ, Cano SJ, Klassen AF, McCarthy CM, Scott AM, Cordeiro PG, et al. Measuring and managing patient expectation for breast reconstruction: A new preoperative patient assessment tool. ISOQOL; 2010; London, UK.
  40. Scott AM, McCarthy CM, Klassen AF, Cano SJ, Pusic AL, Jhanwar SM. Development of a new BREAST-Q module for Breast Cancer Patients: The Breast-Conserving Therapy (BCT) Module ISOQOL; London, UK, 2010.
  41. Regnault A, Gater A, Battersby C, McIntosh S, Meunier J, Abetz L. Confirmation of Brief Pain Inventory Short Form (BPI-SF) 'worst pain' item cut-point for the assessment of pain progression in castration-resistant prostate cancer (CRPC). ISPOR; Prague, Czech Republic, 2010.
  42. De Jong F, Viala-Danten M, Van Herwaarden R, Poppe K, Van Haaster C, Meunier J, et al. Psychometric validation of a patient questionnaire evaluating satisfaction with a darbepoetin alpha pre-filled device for self-injection (Aranesp® SureClick™ device), and a home-service (2care® service) in chemotherapy-induced anaemic cancer patients. ISPOR; Atlanta, USA, 2010.
  43. Cano S, Klassen AF, Scott A, Thoma A, Feeny D, Pusic A. Health outcome and economic measurement in breast cancer surgery: challenges and opportunities. Expert Rev Pharmacoecon Outcomes Res. 2010;10(5):583-94.
  44. Bredart A, Sultan S, Regnault A. Patient satisfaction instruments for cancer clinical research or practice. Expert Rev Pharmacoecon Outcomes Res. 2010;10(2):129-41.
  45. Meunier J, Regnault A, Robinson DJ, Rosa K, San Miguel JF, Richardson PG, et al. Impact of tumor response on health-related quality of life (HRQoL) in newly diagnosed multiple myeloma patients treated with VELCADE/melphalan/prednisone (V-MP): Results from the VISTA trial. ISPOR Paris, France, 2009.
  46. Klassen AF, Dix D, Cano SJ, Papsdorf M, Sung L, Klaassen RJ. Evaluating family-centred service in paediatric oncology with the measure of processes of care (MPOC-20). Child: care, health and development. 2009;35(1):16-22.
  47. Dhawan R, Robinson DJ, Meunier J, Regnault A, Rosa K, Cakana A, et al. Sustained Health-Related Quality of Life (HRQoL) improvement in newly diagnosed multiple myeloma patients treated with bortezomib/melphalan/prednisone versus melphalan/prednisone: results from the VISTA trial. American Society of Hematology annual meeting; New Orleans, USA, 2009.
  48. Dhawan R, Meunier J, Regnault A, Rosa K, Robinson DJ, Cakana A, et al. Impact of Complete Response on Health-Related Quality of Life in newly diagnosed multiple myeloma patients: results from the VISTA trial. 12th International Multiple Myeloma Workshop; Washington DC, USA, 2009.
  49. Pusic A, Liu JC, Chen CM, Cano S, Davidge K, Klassen A, et al. A systematic review of patient-reported outcome measures in head and neck cancer surgery. Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery. 2007;136(4):525-35.
  50. Pusic AL, Liu J, Chen CM, Cano S, Davridge K, Klassen A, et al. Health-Related Quality of Life in Head and Neck Cancer: A Review of Patient-Reported Outcome Measures. American Head and Neck Society Annual Meeting; Chicago, IL, USA, 2006.
  1. Regnault A, Boroojerdi B, Meunier J, Bani M, Cano S. A Psychometric Analysis of the MDS-UPDRS-II and -III in Early Parkinson’s Disease: Do the Numbers Add Up? International Congress of Parkinson’s Disease and Movement Disorders; October 8; Hong Kong, China, 2018.
  2. Strzok S, Cleanthous S, Pompilus F, Cano SJ, Marquis P, Cohan S, et al. Development of a gait module to complement the 12-item Multiple Sclerosis Walking Scale: a mixed methods study. Multiple Sclerosis Journal. 2018;4(2):2055217318783766.
  3. Cleanthous S, Strzok S, Pompilus F, Cano S, Marquis P, Cohan S, et al. Addressing the targeting range of the ABILHAND-56 in relapsing–remitting multiple sclerosis: A mixed methods psychometric study. Multiple Sclerosis Journal - Experimental, Translational and Clinical. 2018;4(2):2055217318776990.
  4. Petrillo J, Cadavid D, Castrillo-Viguera C, Cleanthous S, Pompilus F, Strzok S, et al. Expanding Our Understanding of Daily Life Activity Impact in Patients with Multiple Sclerosis. 7th Joint ECTRIMS-ACTRIMS Meeting; Paris, France, 2017.
  5. Hurt C, Cleanthous S, Newman SP. Further explorations of illness uncertainty: Carer's experiences of Parkinson's disease. Psychology & Health. 2017;32(5):549-66.
  6. Cleanthous S, Cano S, Kinter E, Marquis P, Petrillo J, You X, et al. Measuring the impact of multiple sclerosis: Enhancing the measurement performance of the Multiple Sclerosis Impact Scale (MSIS-29) using Rasch Measurement Theory (RMT). Multiple Sclerosis Journal – Experimental, Translational and Clinical. 2017;3(3):2055217317725917.
  7. Chen SY, Strzok S, Cleanthous S, Pompilus F, Cano S, Marquis P, et al. Development of a Gait Module to Complement the 12-item Patient-Reported Multiple Sclerosis Walking Scale. American Academy of Neurology 2017 - 69th Annual Meeting; Boston, MA, USA, 2017.
  8. Chen SY, Pompilus F, Strzok S, Cleanthous S, Cano S, Marquis P, et al. Patient-Reported Outcome Measurement in Manual Ability for Multiple Sclerosis: Addressing the Targeting Issues of the ABILHAND (P3. 364). American Academy of Neurology Boston, MA, USA, 2017.
  9. Chen SY, Pompilus F, Strzok S, Cleanthous S, Cano S, Marquis P, et al. Development of a Conceptual Framework for Daily Life Activities in Patients with Early Stage Relapsing-Remitting Multiple Sclerosis. 32nd Congress of the European Committee for Treatment and Research in Multiple Sclerosis; London, UK, 2016.
  10. Rakusa M, Cano SJ, Porter B, Riazi A, Thompson AJ, Chataway J, et al. A predictive model for corticosteroid response in individual patients with MS relapses. PloS one. 2015;10(3):e0120829.
  11. Hobart J, Cleanthous S, Zajieck J, Cano S. CONFUSION IN CLINICAL TRIALS OF ALZHEIMER'S DISEASE. Journal of Neurology Neurosurgery & Psychiatry. 2015;86:e4.
  12. Cano S, Cleanthous S, Marquis P, Hobart J, Naoshy S, Mikol D, et al. Measuring the Impact of Multiple Sclerosis: Enhancing the Performance of the Msis-29 and Msws-12. ISPOR; Milan, Italy, 2015.
  13. Cano S, Cleanthous S, Marquis P, Hobart J, Naoshy S, Mikol D, et al. Measuring the Impact of Secondary Progressive Multiple Sclerosis (Spms) in the Ascend Trial: Equating the Msis-29, Msws-12, Abilhand-56 and Sf-36. ISPOR; Milan, Italy, 2015.
  14. Cano S, Cleanthous S, Marquis P, Hobart J, Naoshy S, Mikol D, et al. Measuring Upper Limb Function In Multiple Sclerosis: Enhancing The Abilhand’s Performance. ISPOR; Philadelphia, USA, 2015.
  15. Cano S, Cleanthous S, Kinter E, Hobart J, Marquis P, Petrillo J, et al. Measuring the impact of multiple sclerosis: enhancing the MSIS-29's performance. Congress of European Committee for Treatment and Research in Multiple Sclerosis; Barcelona, Spain, 2015.
  16. Barrett L, Cano S, Zajicek J, Hobart J. Lending a hand: can DASH items help ABILHAND improve manual ability measurement in multiple sclerosis? Multiple sclerosis (Houndmills, Basingstoke, England). 2015;21(5):612-21.
  17. Jellie B, Sweetland J, Riazi A, Cano SJ, Playford ED. Staying at work and living with MS: a qualitative study of the impact of a vocational rehabilitation intervention. Disability and rehabilitation. 2014;36(19):1594-9.
  18. Cano SJ, Mayhew A, Glanzman AM, Krosschell KJ, Swoboda KJ, Main M, et al. Rasch analysis of clinical outcome measures in spinal muscular atrophy. Muscle & nerve. 2014;49(3):422-30.
  19. van Seventer R, Vos C, Giezeman M, Meerding WJ, Arnould B, Regnault A, et al. Validation of the Dutch version of the DN4 diagnostic questionnaire for neuropathic pain. Pain Pract. 2013;13(5):390-8.
  20. Posner HB, Cano S, Carrillo MC, Selnes O, Stern Y, Thomas RG, et al. Establishing the psychometric underpinning of cognition measures for clinical trials of Alzheimer's disease and its precursors: a new approach. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2013;9(1 Suppl):S56-60.
  21. Mayhew AG, Cano SJ, Scott E, Eagle M, Bushby K, Manzur A, et al. Detecting meaningful change using the North Star Ambulatory Assessment in Duchenne muscular dystrophy. Developmental medicine and child neurology. 2013;55(11):1046-52.
  22. Hobart J, Cano S, Posner H, Selnes O, Stern Y, Thomas R, et al. Putting the Alzheimer's cognitive test to the test II: Rasch Measurement Theory. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2013;9(1 Suppl):S10-20.
  23. Hobart J, Cano S, Posner H, Selnes O, Stern Y, Thomas R, et al. Putting the Alzheimer's cognitive test to the test I: traditional psychometric methods. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2013;9(1 Suppl):S4-9.
  24. Hobart J, Cano S, Baron R, Thompson A, Schwid S, Zajicek J, et al. Achieving valid patient-reported outcomes measurement: a lesson from fatigue in multiple sclerosis. Multiple sclerosis (Houndmills, Basingstoke, England). 2013;19(13):1773-83.
  25. Barrett LE, Cano SJ, Zajicek JP, Hobart JC. Can the ABILHAND handle manual ability in MS? Multiple sclerosis (Houndmills, Basingstoke, England). 2013;19(6):806-15.
  26. Mayhew AG, Eagle M, Scott E, Bushby KMD, Adnan M, Muntoni F, et al. Trial readiness: clinical interpretability of change scores of the North Star Ambulatory Assessment in Duchenne muscular dystropy. 17th International Congress of The World Muscle Society; Perth, Australia, 2012.
  27. Hobart JC, Cano SJ, Thompson AJ, Andrich D. It's time to change the way we measure change: demonstration, explanation, recommendations. 28th Congress of the European Committee for Treatment and Research In Multiple Sclerosis; 2012; Lyon, France.
  28. Ho AL, Scott AM, Klassen AF, Cano SJ, Pusic AL, Van Laeken N. Measuring quality of life and patient satisfaction in facial paralysis patients: a systematic review of patient-reported outcome measures. Plast Reconstr Surg. 2012;130(1):91-9.
  29. Mayhew A, Cano S, Scott E, Eagle M, Bushby K, Muntoni F. Moving towards meaningful measurement: Rasch analysis of the North Star Ambulatory Assessment in Duchenne muscular dystrophy. Developmental medicine and child neurology. 2011;53(6):535-42.
  30. Cano SJ, Barrett LE, Zajicek JP, Hobart JC. Beyond the reach of traditional analyses: using Rasch to evaluate the DASH in people with multiple sclerosis. Multiple sclerosis (Houndmills, Basingstoke, England). 2011;17(2):214-22.
  31. Baker K, Cano SJ, Playford ED. Outcome measurement in stroke: a scale selection strategy. Stroke. 2011;42(6):1787-94.
  32. Zajicek JP, Cano SJ, Barrett LE, Hobart JC. Beyond traditional psychometric methods: Can Rasch help the DASH? . ISOQOL; 2010; London, UK.
  33. Regnault A, Gilet H, Meerding WJ, Arnould B. Methodological challenges for the evaluation of patient-reported screening tools: Example of a neuropathic pain screening tool. 31st Annual conference of the International Society for Clinical Biostatistics (ISCB); 2010; Montpellier, France.
  34. Freeman RG, Cano S, Slade A, Delatycki M, Tai G, Hobart J. Cross-cultural Comparisons: Lessons from Friedreich's Ataxia ISOQOL; London, UK, 2010.
  35. Cano SJ, Thompson AJ. How to measure the effects of rehabilitation. In: Kesselring, Comi, Thompson, editors. Recovery in Multiple Sclerosis. Cambridge: Cambridge University Press; 2010.
  36. Cano SJ, Posner HB, Moline ML, Hurt SW, Swartz J, Hsu T, et al. The ADAS-cog in Alzheimer's disease clinical trials: psychometric evaluation of the sum and its parts. Journal of neurology, neurosurgery, and psychiatry. 2010;81(12):1363-8.
  37. Baker K, Playford ED, Cano SJ. Reaching the right decision: Proposal of a scale selection strategy in stroke research. ISOQOL; 2010; London, UK.
  38. Hobart J, Cano S. Improving the evaluation of therapeutic interventions in multiple sclerosis: the role of new psychometric methods. Health technology assessment (Winchester, England). 2009;13(12):iii, ix-x, 1-177.
  39. Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Movement disorders : official journal of the Movement Disorder Society. 2009;24(7):984-92.
  40. Cano S, Posner H, Aisen P, Selnes O, Stern Y, Thomas R, et al. The ADAS-cog's performance as a measure—lessons from the ADNI study: Part 2 - evaluation using modern psychometric methods. 61st Alzheimer's Association International Conference on Alzheimer's Disease; Vienna, Austria, 2009.
  41. Cleanthous S, Cooke D, Kirk A, Isenberg D, Newman S. Illness perception questionnaire: An investigation of the structure of illness perceptions in systemic lupus erythematosus. Psychology & Health. 2008;23:87-8.
  42. Cano SJ, Warner TT, Thompson AJ, Bhatia KP, Fitzpatrick R, Hobart JC. The cervical dystonia impact profile (CDIP-58): can a Rasch developed patient reported outcome measure satisfy traditional psychometric criteria? Health Qual Life Outcomes. 2008;6:58.
  43. Sweetland J, Riazi A, Cano SJ, Playford ED. Vocational rehabilitation services for people with multiple sclerosis: what patients want from clinicians and employers. Multiple sclerosis (Houndmills, Basingstoke, England). 2007;13(9):1183-9.
  44. Cano SJ, Warner TT. Dystonia rating scales. In: Warner TT, Bressman S, editors. Clinical Diagnosis and Management of Dystonia. Oxford: Informa Healthcare; 2007.
  45. Cano SJ, Warner TT. Dystonia and quality of life. In: Warner TT, Bressman S, editors. Clinical Diagnosis and Management of Dystonia. Oxford: Informa Healthcare; 2007.
  46. Cano SJ, Thompson AJ, Bhatia K, Fitzpatrick R, Warner TT, Hobart JC. Evidence-based guidelines for using the Short Form 36 in cervical dystonia. Movement disorders : official journal of the Movement Disorder Society. 2007;22(1):122-6.
  47. Riazi A, Cano SJ, Cooper JM, Bradley JL, Schapira AH, Hobart JC. Coordinating outcomes measurement in ataxia research: do some widely used generic rating scales tick the boxes? Movement disorders : official journal of the Movement Disorder Society. 2006;21(9):1396-403.
  48. Cano SJ, Hobart JC, Edwards M, Fitzpatrick R, Bhatia K, Thompson AJ, et al. CDIP-58 can measure the impact of botulinum toxin treatment in cervical dystonia. Neurology. 2006;67(12):2230-2.
  49. Cano SJ, Hobart JC. Measuring multiple sclerosis rehabilitation outcomes. In: Thompson AJ, editor. Neurological Rehabilitation of Multiple Sclerosis. Oxford: Informa Healthcare; 2006.
  50. O'Connor RJ, Cano SJ, Ramio i Torrenta L, Thompson AJ, Playford ED. Factors influencing work retention for people with multiple sclerosis: cross-sectional studies using qualitative and quantitative methods. Journal of neurology. 2005;252(8):892-6.
  51. Cano SJ, Hobart JC, Hart PE, Korlipara LV, Schapira AH, Cooper JM. International Cooperative Ataxia Rating Scale (ICARS): appropriate for studies of Friedreich's ataxia? Movement disorders : official journal of the Movement Disorder Society. 2005;20(12):1585-91.
  52. McNeill A, Cano S, Warner TT. Clinical diagnosis of cervical dystonia. The European journal of general practice. 2004;10(2):73-4; discussion 4.
  53. Cano SJ, Warner TT, Linacre JM, Bhatia KP, Thompson AJ, Fitzpatrick R, et al. Capturing the true burden of dystonia on patients: the Cervical Dystonia Impact Profile (CDIP-58). Neurology. 2004;63(9):1629-33.
  54. Cano SJ, Hobart JC, Fitzpatrick R, Bhatia K, Thompson AJ, Warner TT. Patient-based outcomes of cervical dystonia: a review of rating scales. Movement disorders : official journal of the Movement Disorder Society. 2004;19(9):1054-9.
  55. Cano SJ, Browne JP, Lamping DL, Roberts AH, McGrouther DA, Black NA. The Patient Outcomes of Surgery-Hand/Arm (POS-Hand/Arm): a new patient-based outcome measure. Journal of hand surgery (Edinburgh, Scotland). 2004;29(5):477-85.
  56. Warner TT, Cano SJ, Fitzpatrick R, Bhatia K, Thompson AJ, Hobart JC. The Cervical Dystonia Impact Profile (CDIP-58): 1 – Development and Validation. ISOQOL; 2003; Prague, Czech Republic.
  57. Hobart JC, Cano SJ, Thompson AJ, O’Connor R. The Multiple Sclerosis Impact Scale: validation in eight European countries using Rasch technology. ISOQOL; 2003; Prague, Czech Republic.
  58. Cano SJ, Warner TT, Hobart JC. The Cervical Dystonia Impact Profile (CIDP-58): 2 – Comparison of traditional methods and Rasch technology for developing scales. ISOQOL; 2003; Prague, Czech Republic.
  1. Klassen AF, Wong-Riff KWY, Longmire NM, Albert A, Allen GC, Aydiny MA, et al. Psychometric Findings and Normative Values for the CLEFT-Q based on 2,434 Children and Young Adult Patients with Cleft Lip and/or Palate from 12 Countries. Canadian Medical Association Journal. 2018;190(15):E455-62.
  2. Klassen AF, Kaur M, Breitkopf T, Thoma A, Cano S, Pusic A. Using the BODY-Q to Understand Impact of Weight Loss, Excess Skin and the Need for Body Contouring Following Bariatric Surgery. Plast Reconstr Surg. 2018.
  3. Browne JP, Jeevan R, Pusic AL, Klassen AF, Gulliver-Clarke C, Pereira J, et al. Measuring the patient perspective on latissimus dorsi donor site outcomes following breast reconstruction. Journal of plastic, reconstructive & aesthetic surgery : JPRAS. 2018;71(3):336-43.
  4. Wong Riff KW, Tsangaris E, Goodacre T, Forrest CR, Pusic AL, Cano SJ, et al. International multiphase mixed methods study protocol to develop a cross-cultural patient-reported outcome instrument for children and young adults with cleft lip and/or palate (CLEFT-Q). BMJ Open. 2017;7(1):e015467.
  5. Poulsen L, Klassen A, Rose M, Roessler KK, Juhl CB, Støving RK, et al. Psychometric validation of the BODY-Q in Danish patients undergoing weight loss and body contouring surgery. Plast Reconstr Surg Glob Open. 2017;5(10):e1529.
  6. Klassen AF, Cano SJ, Grotting JC, Baker SB, Carruthers J, Carruthers A, et al. FACE-Q Eye Module for Measuring Patient-Reported Outcomes Following Cosmetic Eye Treatments. JAMA Facial Plast Surg. 2017;19(1):7-14.
  7. Fuzesi S, Cano SJ, Klassen AF, Atisha D, Pusic AL. Validation of the electronic version of the BREAST-Q in the army of women study. Breast. 2017;33:44-9.
  8. Mundy LR, Miller HC, Klassen AF, Cano SJ, Pusic AL. Patient-Reported Outcome Instruments for Surgical and Traumatic Scars: A Systematic Review of their Development, Content, and Psychometric Validation. Aesthetic Plast Surg. 2016;40(5):792-800.
  9. Klassen AF, Cano SJ, Schwitzer JA, Baker SB, Carruthers A, Carruthers J, et al. Development and Psychometric Validation of the FACE-Q Skin, Lips, and Facial Rhytids Appearance Scales and Adverse Effects Checklists for Cosmetic Procedures. JAMA Dermatol. 2016;152(4):443-51.
  10. Klassen AF, Cano SJ, Pusic AL. Use of FACE-Q to Measure Quality of Life Following Aesthetic Facial Treatments. JAMA Facial Plast Surg. 2016;18(2):148-9.
  11. Klassen AF, Cano SJ, Pusic AL. FACE-Q Satisfaction with Appearance Scores from Close to 1000 Facial Aesthetic Patients. Plast Reconstr Surg. 2016;137(3):651e-2e.
  12. Klassen AF, Cano SJ, East CA, Baker SB, Badia L, Schwitzer JA, et al. Development and Psychometric Evaluation of the FACE-Q Scales for Patients Undergoing Rhinoplasty. JAMA Facial Plast Surg. 2016;18(1):27-35.
  13. Klassen AF, Cano SJ, Alderman A, Soldin M, Thoma A, Robson S, et al. The BODY-Q: A Patient-Reported Outcome Instrument for Weight Loss and Body Contouring Treatments. Plast Reconstr Surg Glob Open. 2016;4(4):e679.
  14. Klassen AF, Cano SJ, Alderman A, East C, Badia L, Baker SB, et al. Self-Report Scales to Measure Expectations and Appearance-Related Psychosocial Distress in Patients Seeking Cosmetic Treatments. Aesthet Surg J. 2016;36(9):1068-78.
  15. Klassen AF, Cano S, Pusic A. RHINO Scale: A Question about Content Validity. Plast Reconstr Surg Glob Open. 2016;4(8):e826.
  16. Cohen WA, Mundy LR, Ballard TN, Klassen A, Cano SJ, Browne J, et al. The BREAST-Q in surgical research: A review of the literature 2009-2015. Journal of plastic, reconstructive & aesthetic surgery : JPRAS. 2016;69(2):149-62.
  17. Cano S, Pendrill L. Metrological standards for use in healthcare decision making: An update on research involving the BREAST-Q. International Outcome Measurement Workshop; 2016; Washington, D.C., USA.
  18. Wong K, Tsangaris E, Goodacre T, Forrest C, Pusic A, Cano S, et al. CLEFT-Q - who’s ideal is it anyway. 72nd Annual Meeting & Pre-Conference Symposia of the American Cleft Palate-Craniofacial Association; 2015; Palm Springs, CA, USA.
  19. Wong K, Tsangaris E, Forrest C, Harman K, Pusic A, Cano S, et al. An early look: a mixed methods study to examine the feasibility, preliminary psychometric performance, and early construct validity of the CLEFT-Q. ISOQOL; Vancouver, Canada, 2015.
  20. Tsangaris E, Wong K, Forrest C, Pusic AL, Cano S, Goodacre T, et al. How qualitative methods can be used to ensure content validity in a PRO instrument for patients with cleft lip and/or palate who vary by age and culture: development of the CLEFT-Q. 72nd Annual Meeting & Pre-Conference Symposia of the American Cleft Palate-Craniofacial Association; 2015; Palm Springs, CA, USA.
  21. Tsangaris E, Wong K, Forrest C, Harman K, Pusic A, Cano S, et al. Determining the psychometric properties of the CLEFT-Q using two different sets of response options. ISOQOL; 2015; Vancouver, Canada.
  22. Schwitzer JA, Klassen AF, Cano SJ, Baker SB, East C, Pusic AL. Measuring Satisfaction with Appearance: Validation of the FACE-Q Scales for the Nose, Forehead, Cheekbones, and Chin. Plast Reconstr Surg. 2015;136(4 Suppl):140-1.
  23. Razdan SN, Scott AM, Cano S, Cordeiro PG, Pusic AL, McCarthy CM. Does the mind get what the mind expects? Patient expectations and satisfaction in breast reconstructive surgery: A pilot study. Plastic Surgery Research Council; 2015; Seattle, WA, USA.
  24. Klassen AF, Cano SJ, Schwitzer JA, Scott AM, Pusic AL. FACE-Q scales for health-related quality of life, early life impact, satisfaction with outcomes, and decision to have treatment: development and validation. Plast Reconstr Surg. 2015;135(2):375-86.
  25. Klassen A, Alderman A, Soldin M, Robson S, Kaur M, Cano S, et al. Development and psychometric validation of a PRO instrument for obese, bariatric and cosmetic body contouring patients: the BODY-Q. ISOQOL; 2015; Vancouver, Canada.
  26. Tsangaris E, Wong K, Forrest C, Pusic A, Cano S, Goodacre T, et al. How qualitative methods can be used to ensure content validity in a PRO instrument for patients with cleft lip and/or palate who vary by age and culture: development of the CLEFT-Q. ISOQOL; 2014; Berlin, Germany.
  27. Schwitzer J, Klassen AF, Cano SJ, Pusic AL. Towards Evidence-Based Practice in Cosmetic Surgery Using the Q-Portfolio of Patient-Reported Outcome Measures Aesthetic Journal. 2014;1(7):28-32.
  28. Pusic A, McCarthy C, Klassen A, Cano S, Cordeiro P. Health-related quality of life (HRQOL) following prophylactic mastectomy and reconstruction. ISOQOL; 2014; Berlin, Germany.
  29. Pusic A, Klassen A, Panchapakesan V, Cano S. Response to "The FACE-Q: the importance of full disclosure and sound methodology in outcomes studies". Aesthet Surg J. 2014;34(4):628-31.
  30. McCarthy CM, Mehrara BJ, Long T, Garcia P, Kropf N, Klassen AF, et al. Chest and upper body morbidity following immediate postmastectomy breast reconstruction. Annals of surgical oncology. 2014;21(1):107-12.
  31. Klassen AF, Cano SJ, Scott AM, Pusic AL. Measuring outcomes that matter to face-lift patients: development and validation of FACE-Q appearance appraisal scales and adverse effects checklist for the lower face and neck. Plast Reconstr Surg. 2014;133(1):21-30.
  32. Klassen AF, Cano SJ, Scott A, Tsangaris E, Pusic AL. Assessing outcomes in body contouring. Clinics in plastic surgery. 2014;41(4):645-54.
  33. Cano SJ, Klassen AF, Scott A, Alderman A, Pusic AL. Interpreting clinical differences in BREAST-Q scores: minimal important difference. Plast Reconstr Surg. 2014;134(1):173e-5e.
  34. Cano S, editor Outcome measurement in Rhinoplasty: The Prominence & Potential of Patient Reported Outcomes. Autumn Meeting of the British Society of Rhinoplasty Surgeons; 2014; Leicester, UK
  35. Cano S, editor Facial Assessment Scales in Clinical Practice: The Prominence & Potential of Patient Reported Outcomes. Facial Aesthetic Conference and Exhibition; 2014; London, UK
  36. Albornoz CR, Matros E, McCarthy CM, Klassen A, Cano SJ, Alderman AK, et al. Implant breast reconstruction and radiation: a multicenter analysis of long-term health-related quality of life and satisfaction. Annals of surgical oncology. 2014;21(7):2159-64.
  37. Wong KWY, Fayed N, Forrest CR, Goodacre T, Pusic A, Gosain A Klaus de Camargo O, et al. Content comparison of the qualitative data informing the CLEFT-Q to generic instruments (PedsQL 4.0, CHQ, KINDL) using the ICF-CY classification. 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies; 2013; Orlando, FL, USA.
  38. Wong K, Goodacre T, Forrest C, Pusic A, Cano S, Klassen A. CLEFT-Q: Cross-cultural and age-related similarities in developing a patient-reported outcome instrument for children with cleft lip and/or palate. ISOQOL; Miami, FL, USA, 2013.
  39. Wildgoose P, Scott A, Pusic AL, Cano S, Klassen AF. Psychological screening measures for cosmetic plastic surgery patients: a systematic review. Aesthet Surg J. 2013;33(1):152-9.
  40. Pusic AL, Klassen AF, Scott AM, Cano SJ. Development and psychometric evaluation of the FACE-Q satisfaction with appearance scale: a new patient-reported outcome instrument for facial aesthetics patients. Clinics in plastic surgery. 2013;40(2):249-60.
  41. Pusic A, Klassen AF, Scott AM, Cano S. Psychometric development of a new PRO instrument: The FACE-Q scales for facelift patients. Canadian Society of Plastic Surgery Meeting; 2013; Calgary, Canada.
  42. Panchapakesan V, Klassen AF, Cano SJ, Scott AM, Pusic AL. Development and psychometric evaluation of the FACE-Q Aging Appraisal Scale and Patient-Perceived Age Visual Analog Scale. Aesthet Surg J. 2013;33(8):1099-109.
  43. Klassen AF, Cano S, Scott AM, Pusic AL. Measuring Outcomes that Matter to Facelift Patients: The FACE-Q Appearance and Age Appraisal Scales and Adverse Effects Checklist. British Association of Aesthetic Plastic Surgeons; 2013; London, UK.
  44. Klassen A, Cano S, Scott AM, Pusic AL. Introducing FACE-Q Scales for Patient Screening and for Psychosocial Well-being. British Association of Aesthetic Plastic Surgeons; 2013; London, UK.
  45. Ho AL, Klassen AF, Cano S, Scott AM, Pusic AL. Optimizing patient-centered care in breast reconstruction: the importance of preoperative information and patient-physician communication. Plast Reconstr Surg. 2013;132(2):212e-20e.
  46. Cano SJ, Klassen AF, Scott AM, Pusic AL. A closer look at the BREAST-Q((c)). Clinics in plastic surgery. 2013;40(2):287-96.
  47. Cano SJ, Klassen AF, Scott A, Cordeiro PG, Pusic AL. Reply: The Rasch model: "Litmus Test" de rigueur for rating scales? Plast Reconstr Surg. 2013;131(2):286e-8e.
  48. Wong KWY, Fayed N, Forrest CR, Goodacre T, Pusic A, Gosain A, et al. Content comparison of the qualitative data informing the CLEFT-Q to generic instruments (Peds-QL 4.0, CHQ, KINDL) using the ICF-CY classification. ISOQOL; 2012; Budapest, Hungary.
  49. Wong KW, Goodacre T, Forrest CR, Pusic AL, Johnson J, Lawson J, et al. Informing the CLEFT-Q: Defining the gap in the measurement of health concepts important to patients with cleft lip and/or palate. Appearance Matters 5 2012; Bristol, UK.
  50. Wong KW, Goodacre T, Forrest CF, Pusic A, Gosain A, Johnson J, et al. Developing a Patient-Reported Outcome Measure for Cleft Lip and Palate (CLEFT-Q): Item Generation. Canadian Society of Plastic Surgeons Annual Meeting; 2012; Toronto, Canada.
  51. Scott AM, Cano S, Warren R, VanLaeken NY, Pusic AL. Measuring Quality of Life in Facial Aesthetic Patients: Field-testing of a new Modular system (THE FACE-Q). Canadian Society of Plastic Surgeons Annual Meeting; 2012; Toronto, Canada.
  52. Pusic AL, Klassen AF, Snell L, Cano SJ, McCarthy C, Scott A, et al. Measuring and managing patient expectations for breast reconstruction: impact on quality of life and patient satisfaction. Expert Rev Pharmacoecon Outcomes Res. 2012;12(2):149-58.
  53. Pusic AL, Klassen AF, Cano SJ. Discussion: The BREAST-Q: further validation in independent clinical trials. Plast Reconstr Surg. 2012;130(3):482e-3e; author reply 3e.
  54. Pusic AL, Klassen AF, Cano SJ. Use of the BREAST-Q in clinical outcomes research. Plast Reconstr Surg. 2012;129(1):166e-7e; author reply 7e.
  55. Pusic AL, Klassen A, Scott AM, Cano S. Measuring quality of life in facial aesthetic patients: Field testing of a new modular system (The FACE-Q). Appearance Matters 5; 2012; Bristol, UK.
  56. Pusic A, Klassen A, Scott AM, Cano S, Shouery M, Basch EM. Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction. American Society of Clinical Oncology; 2012; Chicago, IL, USA.
  57. Pusic A, Cano S, Klassen A, Scott AM, Shouery M, Basch E, et al. Feasibility and acceptability of patient-reported outcomes data collection for clinical care following breast reconstruction. ISOQOL; Budapest, Hungary, 2012.
  58. Price AN, Scott AM, Klassen A, Cano S, Mehrara BJ, Disa JJ, et al. Patient-reported satisfaction with psychosocial and sexual well-being and the nipple areola complex: comparison of preservation and reconstruction. ISOQOL; Budapest, Hungary, 2012.
  59. Price AN, Pusic AL, Cano S, VanLaeken N, Johnson J, Klassen AF. The BODY-Q: A new patient-reported outcome (PRO) measure for body contouring patients. Canadian Society of Plastic Surgeons Annual Meeting; 2012; Toronto, Canada.
  60. McCarthy CM, Cano SJ, Klassen AF, Scott A, Van Laeken N, Lennox PA, et al. The magnitude of effect of cosmetic breast augmentation on patient satisfaction and health-related quality of life. Plast Reconstr Surg. 2012;130(1):218-23.
  61. Klassen AF, Tsangaris E, Forrest CR, Wong KW, Pusic AL, Cano SJ, et al. Quality of life of children treated for cleft lip and/or palate: a systematic review. Journal of plastic, reconstructive & aesthetic surgery : JPRAS. 2012;65(5):547-57.
  62. Klassen AF, Cano SJ, Scott A, Johnson J, Pusic AL. Satisfaction and quality-of-life issues in body contouring surgery patients: a qualitative study. Obesity surgery. 2012;22(10):1527-34.
  63. Ho AL, Klassen A, Cano S, Scott AM, Pusic A. Optimizing satisfaction in breast reconstruction: the importance of the preoperative information and patient-physician communication. ISOQOL; Budapest, Hungary, 2012.
  64. Cano SJ, Klassen AF, Scott AM, Cordeiro PG, Pusic AL. The BREAST-Q: further validation in independent clinical samples. Plast Reconstr Surg. 2012;129(2):293-302.
  65. Albornoz CR, Matros M, Pusic A, Klassen A, Cano S, McCarthy C, et al. Breast reconstruction and radiation: an analysis of quality of life and satisfaction among patients undergoing implant reconstruction. ISOQOL; 2012; Budapest, Hungary.
  66. Scott AM, Klassen AF, Pusic AL, Cano S, Cordeiro PG, Morrow M, et al. Adaptation of existing PRO measures for use in additional patient populations: The BREAST-Q© BCT Module. ISOQOL; 2011; Denver, CO, USA.
  67. Scott A, Pusic AL, Cano SJ, Johnson J, Lawson JL, Wildgoose P, et al. The BODY-Q: A New Patient-Reported Outcome (PRO) Measure for Body Contouring Patients (CP). ISOQOL; Denver, CO, USA 2011.
  68. Reavey PL, Klassen AF, Cano SJ, McCarthy C, Scott A, Rubin JP, et al. Measuring quality of life and patient satisfaction after body contouring: a systematic review of patient-reported outcome measures. Aesthet Surg J. 2011;31(7):807-13.
  69. Pusic AL, Lemaine V, Klassen AF, Scott AM, Cano SJ. Patient-reported outcome measures in plastic surgery: use and interpretation in evidence-based medicine. Plast Reconstr Surg. 2011;127(3):1361-7.
  70. Klassen A, Goodacre T, Wong K, Pusic A, Cano S, Tsangaris E, et al. Developing a Patient-Reported Outcome Measure for Cleft-Lip and/or Palate Patients. ISOQOL; 2011; Denver, CO, USA.
  71. Chen CM, Klassen AF, Cano SJ, Pusic AL. BCTOS in Measuring HR-QoL After Breast-Conserving Therapy. The Breast Journal. 2011;17(4):443.
  72. Cano SJ, Pusic AL, Klassen A. From BREAST-Q © to Q-Score ©: Using Rasch Measurement to better capture breast surgery outcomes. Proceedings from the Joint International IMEKO TC1+ TC7+ TC13 Symposium. 2011:82-94.
  73. Snell LJ, Cano SJ, Klassen AF, McCarthy CM, Scott AM, Cordeiro PG, et al. Measuring and managing patient expectation for breast reconstruction: A new preoperative patient assessment tool. ISOQOL; 2010; London, UK.
  74. Snell L, McCarthy C, Klassen A, Cano S, Rubin L, Hurley K, et al. Clarifying the expectations of patients undergoing implant breast reconstruction: a qualitative study. Plast Reconstr Surg. 2010;126(6):1825-30.
  75. Scott AM, McCarthy CM, Klassen AF, Cano SJ, Pusic AL, Jhanwar SM. Development of a new BREAST-Q module for Breast Cancer Patients: The Breast-Conserving Therapy (BCT) Module ISOQOL; London, UK, 2010.
  76. Pusic AL, Klassen AF, Scott AM, Cano SJ. Discussion. The measure of face-lift patient satisfaction: the Owsley Facelift Satisfaction Survey with a long-term follow-up study. Plast Reconstr Surg. 2010;126(1):258-60.
  77. McCarthy CM, Klassen AF, Cano SJ, Scott A, Vanlaeken N, Lennox PA, et al. Patient satisfaction with postmastectomy breast reconstruction: a comparison of saline and silicone implants. Cancer. 2010;116(24):5584-91.
  78. Klassen AF, Cano SJ, Scott A, Snell L, Pusic AL. Measuring patient-reported outcomes in facial aesthetic patients: development of the FACE-Q. Facial plastic surgery : FPS. 2010;26(4):303-9.
  79. Chen CM, Cano SJ, Klassen AF, King T, McCarthy C, Cordeiro PG, et al. Measuring quality of life in oncologic breast surgery: a systematic review of patient-reported outcome measures. The breast journal. 2010;16(6):587-97.
  80. Rubin LR, Klassen A, Cano SJ, Hurley K, Pusic AL. Motivations for breast surgery: a qualitative comparison study of breast reconstruction, augmentation, and reduction patients. The breast journal. 2009;15(6):666-7.
  81. Pusic AL, Reavey PL, Klassen AF, Scott A, McCarthy C, Cano SJ. Measuring patient outcomes in breast augmentation: introducing the BREAST-Q Augmentation module. Clinics in plastic surgery. 2009;36(1):23-32, v.
  82. Pusic AL, Klassen AF, Scott AM, Klok JA, Cordeiro PG, Cano SJ. Development of a new patient-reported outcome measure for breast surgery: the BREAST-Q. Plast Reconstr Surg. 2009;124(2):345-53.
  83. Kosowski TR, McCarthy C, Reavey PL, Scott AM, Wilkins EG, Cano SJ, et al. A systematic review of patient-reported outcome measures after facial cosmetic surgery and/or nonsurgical facial rejuvenation. Plast Reconstr Surg. 2009;123(6):1819-27.
  84. Klassen AF, Pusic AL, Scott A, Klok J, Cano SJ. Satisfaction and quality of life in women who undergo breast surgery: a qualitative study. BMC women's health. 2009;9:11.
  85. Cano SJ, Klassen A, Pusic AL. The science behind quality-of-life measurement: a primer for plastic surgeons. Plast Reconstr Surg. 2009;123(3):98e-106e.
  86. Pusic AL, McCarthy C, Cano SJ, Klassen AF, Kerrigan CL. Clinical research in breast surgery: reduction and postmastectomy reconstruction. Clinics in plastic surgery. 2008;35(2):215-26.
  87. Pusic AL, Klassen A, Cano SJ, Kerrigan CL. Validation of the breast evaluation questionnaire. Plast Reconstr Surg. 2007;120(1):352-3.
  88. Pusic AL, Chen CM, Cano S, Klassen A, McCarthy C, Collins ED, et al. Measuring quality of life in cosmetic and reconstructive breast surgery: a systematic review of patient-reported outcomes instruments. Plast Reconstr Surg. 2007;120(4):823-37; discussion 38-9.
  89. Cano SJ, Browne JP, Lamping DL, Roberts AH, McGrouther DA, Black NA. The Patient Outcomes of Surgery-Head/Neck (POS-head/neck): a new patient-based outcome measure. Journal of plastic, reconstructive & aesthetic surgery : JPRAS. 2006;59(1):65-73.
  90. Cano SJ, Browne JP, Lamping DL. Patient-based measures of outcome in plastic surgery: current approaches and future directions. British journal of plastic surgery. 2004;57(1):1-11.
  1. Lapillonne A, Regnault A, Gournay V, Gouyon JB, Benmedjahed K, Anghelescu D, et al. Development of a questionnaire to assess the impact on parents of their infant's bronchiolitis hospitalization. BMC Health Serv Res. 2013;13(1):272.
  2. Regnault A, Balp MM, Kulich K, Viala-Danten M. Validation of the Treatment Satisfaction Questionnaire for Medication in patients with cystic fibrosis. J Cyst Fibros. 2012;11(6):494-501.
  3. Lapillonne A, Regnault A, Gournay V, Gouyon JB, Gilet H, Anghelescu D, et al. Impact on parents of bronchiolitis hospitalization of full-term, preterm and congenital heart disease infants. BMC Pediatr. 2012;12:171.
  4. Regnault A, Balp MM, Kulich K, Estève L, Viala-Danten M. Association of treatment satisfaction and compliance of cystic fibrosis (CF) patients using inhaled tobramycin treatment in the EAGER study. 34th European Cystic Fibrosis Conference; Hamburg, Germany, 2011.
  5. Regnault A, Balp MM, Kulich K, Estève L, Viala-Danten M. Validation of the treatment satisfaction questionnaire for medication (TSQM) in cystic fibrosis (CF). 34th European Cystic Fibrosis Conference; 2011; Hamburg, Germany.
  6. Gonzalez-Bermejo J, Aguilaniu B, Mueser M, Regnault A, Similowski T. Etude ADL- Typologie des patients. 15e congrès de Pneumologie de Langue Française; 2011; Lille, France.
  7. Aguilaniu B, Gonzalez-Bermejo J, Regnault A, Dias-Barbosa C, Arnould B, Mueser M, et al. Disability related to COPD tool (DIRECT): towards an assessment of COPD-related disability in routine practice. Int J Chron Obstruct Pulmon Dis. 2011;6:387-98.
  8. Gonzalez-Bermejo J, Aguilaniu B, Mueser M, Regnault A, Arnould B, Dias-Barbosa C, et al. Etude ADL. Validation du questionnaire BPCO et Activités quotidiennes, un questionnaire court d'évaluation du handicap des patients BPCO. 14ème congrès de Pneumologie de Langue Française; 2010; Marseille, France.
  9. Regnault A, Mueser M, Dias-Barbosa C, Aguilaniu B, Bonnefoy M, Gonzalez-Bermejo J, et al. Item selection and scoring definition of a disease-specific instrument to assess the handicap in chronic obstructive pulmonary disease (COPD) patients, for use in clinical routine practice. ISPOR; Paris, France, 2009.
  10. Lamping DL, Schroter S, Marquis P, Marrel A, Duprat-Lomon I, Sagnier PP. The community-acquired pneumonia symptom questionnaire: a new, patient-based outcome measure to evaluate symptoms in patients with community-acquired pneumonia. Chest. 2002;122(3):920-9.
  11. Marquis P, Trudeau E. Quality of life and patient satisfaction: two important aspects in asthma therapy. Curr Opin Pulm Med. 2001;7 Suppl 1:S18-20.
  12. Bousquet J, Duchateau J, Pignat JC, Fayol C, Marquis P, Mariz S, et al. Improvement of quality of life by treatment with cetirizine in patients with perennial allergic rhinitis as determined by a French version of the SF-36 questionnaire. J Allergy Clin Immunol. 1996;98(2):309-16.
  13. Bousquet J, Bullinger M, Fayol C, Marquis P, Valentin B, Burtin B. Assessment of quality of life in patients with perennial allergic rhinitis with the French version of the SF-36 Health Status Questionnaire. J Allergy Clin Immunol. 1994;94(2 Pt 1):182-8.
  1. Lee EH, Klassen AF, Cano SJ, Nehal KS, Pusic AL. FACE-Q Skin Cancer Module for Measuring Patient-Reported Outcomes Following Facial Skin Cancer Surgery. The British journal of dermatology. 2018.
  2. Lee EH, Klassen AF, Lawson JL, Cano SJ, Scott AM, Pusic AL. Patient experiences and outcomes following facial skin cancer surgery: A qualitative study. Australas J Dermatol. 2016;57(3):e100-4.
  3. Armstrong A, Sundaram M, Foley C, Pompilus F, Stokes J, Shields A. Content development of patient-reported outcome instruments for the measurement of the primary signs and symptoms of chronic plaque psoriasis. ISOQOL; Vancouver, Canada, 2015.
  4. Armstrong A, Shields A, Stokes J, Pompilus F, Foley C, Iovin R, et al. Development of a Patient-Reported Outcomes Instrument for the Measurement of Treatment Satisfaction in Plaque Psoriasis. World Congress of Dermatology; Vancouver, Canada, 2015.
  5. Rutherford C, Nixon J, Brown JM, Lamping DL, Cano SJ. Using mixed methods to select optimal mode of administration for a patient-reported outcome instrument for people with pressure ulcers. BMC medical research methodology. 2014;14:22.
  6. Lee E, Klassen A, Cano S, Lawson J, Scott A, Pusic A. Hearing the Patient’s Voice: Quality of life Outcomes in Dermatologic Surgery. American College of Mohs Surgery; 2014; Phoenix, AZ, USA.
  7. Alexis A, Daniels SR, Johnson N, Pompilus F, Burgess SM, Harper JC. Development of a new patient-reported outcome measure for facial acne: the Acne Symptom and Impact Scale (ASIS). J Drugs Dermatol. 2014;13(3):333-40.
  8. Lee EH, Klassen AF, Nehal KS, Cano SJ, Waters J, Pusic AL. A systematic review of patient-reported outcome instruments of nonmelanoma skin cancer in the dermatologic population. Journal of the American Academy of Dermatology. 2013;69(2):e59-67.
  9. Lee EH, Klassen A, Lawson JL, Cano SJ, Scott AM, Nehal KS, et al. A qualitative study to develop a conceptual framework to understand the health concerns of patients who undergo facial surgery for skin cancer. ISOQOL; Miami, FL, USA, 2013.
  10. Gorecki C, Brown JM, Cano S, Lamping DL, Briggs M, Coleman S, et al. Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: the PU-QOL instrument. Health Qual Life Outcomes. 2013;11:95.
  11. Cather JC, Horn EJ, Sundaram M, Mukherjee Bal V, Wang K, Foley C, et al. In depth investigation of patient-reported sexual, reproductive, and relationship impacts of psoriasis. Academy of Dermatology and Venereology; Istanbul, Turkey, 2013.
  12. Gorecki C, Lamping DL, Nixon J, Brown JM, Cano S. Applying mixed methods to pretest the Pressure Ulcer Quality of Life (PU-QOL) instrument. Qual Life Res. 2012;21(3):441-51.
  13. Cano SJ, Browne JP, Lamping DL, Roberts AH, McGrouther DA, Black NA. The Patient Outcomes of Surgery-Head/Neck (POS-head/neck): a new patient-based outcome measure. Journal of plastic, reconstructive & aesthetic surgery : JPRAS. 2006;59(1):65-73.
  1. Marrel A, Lanar S, Markowitz JT, Acebo C, Black J, Vanhove GF, et al. The Paediatric Narcolepsy Screening Questionnaire – data from the evaluation of a new tool to help paediatricians identify narcolepsy. Annual Meeting of the European Sleep Research Society; Bologna, Italy, 2016.
  2. Marquis P. Sleep disturbance. A component of health status. Pharmacoeconomics. 1996;10 Suppl 1:25-8.
  1. Acquadro C, Perret C, Regnault A. Pro Claims in Fibromyalgia: A Review of the Labels of Products Approved by the FDA and the EMA. ISPOR; Milan, Italy, 2015.
  2. Baron R, Backonja MM, Eldridge P, Levy R, Vissers K, Attal N, et al. Refractory Chronic Pain Screening Tool (RCPST): a feasibility study to assess practicality and validity of identifying potential neurostimulation candidates. Pain Med. 2014;15(2):281-91.
  3. Stokes J, Evans CJ, Pompilus F, Shields AL, Summers KH. Development of a questionnaire to assess the impact of chronic low back pain for use in regulated clinical trials. Patient. 2013;6(4):291-305.
  4. Gilet H, Arnould B, Regnault A. Applying partial least squares discriminant analysis (PLS-DA) for optimisation of decision rules based on complex patient-reported data: creation of the FibroDetect® scoring method. International Society for Clinical Biostatistics (ISCB) 33rd Annual Conference; Bergen, Norway, 2012.
  5. Cano SJ, Hobart JC. Validity in fatigue measurement: complementing quality and quantity. ISOQOL; 2010; London, UK
  6. Branski RC, Cukier-Blaj S, Pusic A, Cano SJ, Klassen A, Mener D, et al. Measuring quality of life in dysphonic patients: a systematic review of content development in patient-reported outcomes measures. Journal of voice : official journal of the Voice Foundation. 2010;24(2):193-8.
  7. Evans CJ, Trudeau E, Mertzanis P, Marquis P, Pena BM, Wong J, et al. Development and validation of the Pain Treatment Satisfaction Scale (PTSS): a patient satisfaction questionnaire for use in patients with chronic or acute pain. Pain. 2004;112(3):254-66.
  1. Martinez L, Arnould P, Duhot D, Coindard G, Seyler D, Fofana F, et al. Les éléments explicatifs de l'engagement des MG vis-à-vis de la vaccination: Apports de l'étude DIVA. 9ème Congrès de Médecine Générale; 2015; Paris, France.
  2. Arnould B, Fofana F, Meunier J, Coindard G, Seyler D, Duhot D, et al. DIVA (Déterminants des Intentions de Vaccination): Validation psychométrique du questionnaire. 9ème Congrès de Médecine Générale; 2015; Paris, France.
  3. Reygrobellet C, Viala-Danten M, Meunier J, Weber F, Nguyen VH. Perception and acceptance of intradermal influenza vaccination: Patient reported outcomes from phase 3 clinical trials. Hum Vaccin. 2010;6(4):336-45.
  1. Stillman I, Markowitz JT, Meunier J, Marquis P, Joseph C, Siffel C, et al. Eye Dryness Score Is a Useful Single-Item Indicator of Dry Eye Severity: Data From a US Patient Survey. American Academy of Ophthalmology Annual meeting; Chicago, IL, USA, 2018.
  2. Stillman I, Markowitz JT, Marquis P, Meunier J, Siffel C, Joseph C, et al. Negative Impact of Dry Eye Disease on Health- and Vision-Related Quality of Life: Results of an Online Survey in the United States. American Academy of Ophthalmology Annual meeting; Chicago, IL, USA, 2018.
  3. Stillman I, Hossain P, Markowitz JT, Meunier J, Joseph C, Siffel C, et al. Eye Dryness Score is a Useful Single-Item Tool to Assess Severity of Dry Eye Symptoms: Data From a United Kingdom (UK) Patient Survey European Society of Cataract and Refractive Surgeons Congress; 2018; Vienna, Austria.
  4. Hossain P, Markowitz JT, Marquis P, Meunier J, Joseph C, Siffel C, et al. Impact of dry eye disease increases with severity of symptoms: results from a patient survey in the UK. European Society of Cataract and Refractive Surgeons Congress; Vienna, Austria, 2018.
  5. Hossain P, Markowitz JT, Marquis P, Meunier J, Joseph C, Siffel C, et al. Negative impact of dry eye disease on health status and vision-related quality of life. European Society of Cataract and Refractive Surgeons Congress; Vienna, Austria, 2018.
  6. Dana R, Stillman I, Cleanthous S, Markowitz JT, Marquis P. Patient-reported outcomes measurements in Dry Eye Disease: conceptual framework and assessment of existing instruments. World Ophthalmology Congress; 2018; Barcelona, Spain.
  7. Petrillo J, Bressler NM, Lamoureux E, Ferreira A, Cano S. Development of a new Rasch-based scoring algorithm for the National Eye Institute Visual Functioning Questionnaire to improve its interpretability. Health Qual Life Outcomes. 2017;15(1):157.
  8. Petrillo J, Ferreira A, Cano S, Bressler NM, Lamoureux E. Psychometric Performance Of The Nei Vfq-25: Rasch Analysis Of The Nei Vfq-25 As A Measure Of Patient-Reported Visual Function Across Four Retinal Diseases. ISPOR; New Orleans, LA, USA, 2013.
  9. Coon CD, Cano SJ, Petrillo J, Ferreira A, Bressler NM, Lee P, et al., editors. Assessment of the relative precision of the NEI VFQ-25 and a modified, Rasch-scored NEI VFQ in clinical trial data for patients with diabetic macular edema (DME). ISOQOL; 2013; Miami, FL, USA.
  10. Tugaut B, Meunier J, Viala-Danten M, Arnould B, Berdeaux G. Vision-related quality of life (QOL) after cataract refractive surgery. ISPOR; Prague, Czech Republic, 2010.
  11. Regnault A, Viala-Danten M, Gilet H, Berdeaux G. Scoring and psychometric properties of the Eye-Drop Satisfaction Questionnaire (EDSQ), an instrument to assess satisfaction and compliance with glaucoma treatment. BMC Ophthalmol. 2010;10:1.
  12. Nordmann JP, Baudouin C, Renard JP, Denis P, Regnault A, Berdeaux G. Identification of noncompliant glaucoma patients using Bayesian networks and the Eye-Drop Satisfaction Questionnaire. Clin Ophthalmol. 2010;4:1489-96.
  13. Cochener B, Fernandez-Vega L, Alfonso JF, Maurel F, Meunier J, Berdeaux G. Spectacle independence and subjective satisfaction of ReSTOR multifocal intraocular lens after cataract or presbyopia surgery in two European countries. Clin Ophthalmol. 2010;4:81-9.
  14. Berdeaux G, Meunier J, Arnould B, Viala-Danten M. Measuring benefits and patients' satisfaction when glasses are not needed after cataract and presbyopia surgery: scoring and psychometric validation of the Freedom from Glasses Value Scale (FGVS). BMC Ophthalmol. 2010;10:15.
  15. Regnault A, Viala-Danten M, Vigneux M, Berdeaux G. Identifying non compliant glaucoma patients using the EDSQ, a questionnaire measuring satisfaction and compliance of glaucoma treatment. ISPOR; Athens, Greece, 2008.
  16. Regnault A, Viala-Danten M, Vigneux M, Berdeaux G. Scoring and Psychometric Properties of the Eye-Drop Satisfaction Questionnaire (EDSQ). ISPOR; Athens, Greece, 2008.
  17. Meunier J, Berdeaux G, Arnould B, Viala-Danten M. Scoring and psychometric validation of the Freedom from Glasses Value Scale (FGVS). ISPOR; Athens, Greece, 2008.
  18. Berdeaux G, Feneron D, Meunier J, Viala-Danten M, Arnould B, Maurel F. Effectiveness of the ReSTOR multifocal intraocular lens in cataract and presbyopia surgery in two European countries. ISPOR; Athens, Greece, 2008.
  1. Cano S, Melin J, Fisher WP, Stenner AJ, Pendrill L, EMPIR-NeuroMet-15HLT04-consortium. Patient-centred cognition metrology. Journal of Physics: Conference Series. 2018;1065:072033.
  2. Regnault A, Cleanthous S, Markowitz JT, Marquis P, Cano SJ. A Mixed Methods Psychometrics Framework to Reduce the Uncertainty in the Measurement of Patient-Centered Outcomes. Institute of Objective Measurement Workshop; 2018; New York, NY, USA.
  3. Pendrill LR, Cano S, Köbe T, Melin J, Fillmer A. Restitution of ability and difficulty from decision-making: metrology of human-based perceptions. Measurement at the Crossroads: History, Philosophy, and Sociology of Measurement; 2018; Paris, France.
  4. Markowitz J, Regnault A, Cleanthous S, Marquis P, Cano S. Picking up the pace: the case for mixed methods research in pharmaceutical clinical trials. Society of Behavioral Medicine; New Orleans, LA, USA, 2018.
  5. Cano SJ, Pendrill LR, Melin J, Köbe T, Fisher WP, Stenner AJ. Metrology for the Social Sciences: A case for Rasch Measurement Theory (not Rasch Analysis). Institute of Objective Measurement Workshop; 2018; New York, NY, USA.
  6. Cano SJ, Pendrill LR, Barbic SP, Fisher WP. Patient-centred outcome metrology for healthcare decision-making. Journal of Physics: Conference Series. 2018;1044(1):012057.
  7. Calvert M, Kyte D, Mercieca-Bebber R, Slade A, Chan AW, King MT, et al. Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols: The SPIRIT-PRO Extension. Jama. 2018;319(5):483-94.
  8. Regnault A, Willgoss T, Barbic S. Towards the use of mixed methods inquiry as best practice in health outcomes research. Journal of Patient-Reported Outcomes. 2017;2(1):19.
  9. Powers JH, 3rd, Patrick DL, Walton MK, Marquis P, Cano S, Hobart J, et al. Clinician-Reported Outcome Assessments of Treatment Benefit: Report of the ISPOR Clinical Outcome Assessment Emerging Good Practices Task Force. Value Health. 2017;20(1):2-14.
  10. Mcclimans L, Browne J, Cano S. Clinical outcome measurement: Models, theory, psychometrics and practice. Studies in History and Philosophy of Science. 2017;65-66:67-73.
  11. Browne JP, Cano SJ, Smith S. Using Patient-reported Outcome Measures to Improve Health Care: Time for a New Approach. Medical care. 2017;55(10):901-4.
  12. Rixon L, Baron J, McGale N, Lorencatto F, Francis J, Davies A. Methods used to address fidelity of receipt in health intervention research: a citation analysis and systematic review. BMC health services research. 2016;16(1):663.
  13. Cleanthous S, Marquis P, Strzok S, Pompilus F, Regnault A, Cano S. Why we should move mixed methods in psychometric research from a three-step to a" two-step''. ISOQOL; 2016; Copenhagen, Denmark.
  14. Cano SJ, Pendrill L. Why the quality of person-centred metrics counts in healthcare: past, principles and progress. University of Gothenburg Centre for Person-centred Care (GPCC) seminar; 2016; Göteborg, Sweden
  15. Cano SJ. PRO Measurement in 2016: Instrument Development and Modern Psychometrics. Patient Reported Outcomes in Surgery Conference, Plastic Surgery Education Foundation/Council of Medical Specialties; 2016; Washington DC, USA
  16. Cano S, Vosk T, Pendrill L, Stenner J. On trial: the compatibility of measurement in the physical and social sciences. IMEKO TC1-TC7-TC13 Joint Symposium; 2016; Berkeley, CA, USA
  17. Walton MK, Powers JH, 3rd, Hobart J, Patrick D, Marquis P, Vamvakas S, et al. Clinical Outcome Assessments: Conceptual Foundation-Report of the ISPOR Clinical Outcomes Assessment - Emerging Good Practices for Outcomes Research Task Force. Value Health. 2015;18(6):741-52.
  18. Symonds T, Wyrwich KW, Regnault A, Coons SJ. Moving the Science Forward: Tackling Key Psychometric and Methodological Issues Facing the Field of Clinical Outcome Assessment. ISPOR; 2015; Milan, Italy.
  19. Salzberger T, Cano S. Investigating a lack of discrimination between two adjacent response categories in the Rasch model for ordered categories in health measurement. International Outcome Measurement Conference; 2015; Chicago, IL, USA
  20. Regnault A, Herdman M. Using quantitative methods within the Universalist model framework to explore the cross-cultural equivalence of patient-reported outcome instruments. Qual Life Res. 2015;24(1):115-24.
  21. Regnault A, Hamel JF, Patrick DL. Pooling of cross-cultural PRO data in multinational clinical trials: how much can poor measurement affect statistical power? Qual Life Res. 2015;24(2):273-7.
  22. Petrillo J, Cano SJ, McLeod LD, Coon CD. Using classical test theory, item response theory, and Rasch measurement theory to evaluate patient-reported outcome measures: a comparison of worked examples. Value Health. 2015;18(1):25-34.
  23. Cano S, Hobart J. Individual vs group level measurement: Implications for health care outcome economics. International Outcome Measurement Conference; 2015; Chicago, IL, USA
  24. Cano S. Social Measurement: Three Problems, Five Challenges, One Solution. The Making of Measurement, CRASSH 2015; University of Cambridge, UK.
  25. Cano S. New Psychometric Methods - Implications for Surgery. Patient Reported Outcomes in Surgery Conference, American College of Surgeons; 2015; Washington, D.C., USA
  26. Moderator: Regnault A, Speakers: Symonds T, Houyez F, Arnould B. Can Mixed Methods Research be the Solution to the Challenges of Patient-Centered Outcome Research in the Context of Rare Diseases? . ISPOR; 2014; Amsterdam, The Netherlands.
  27. Fofana F, Bonnaud-Antignac A, Regnault A. A mixed method approach to help demonstrate saturation in qualitative research: applying Partial Least Square regression to qualitative data. 1st Mixed Methods International Research Association (MMIRA) Annual Conference; 2014; Boston, USA.
  28. Anthoine E, Moret L, Regnault A, Sebille V, Hardouin JB. Sample size used to validate a scale: a review of publications on newly-developed patient reported outcomes measures. Health Qual Life Outcomes. 2014;12:176.
  29. Acquadro C, Regnault A, Arnould B. Regulatory Issues in Pro Advertising: A Review of the Ddmac/Opdp Letters From 1998 To 2013 To Identify Pro Claims Violations and Examine Their Evolution Over Time. ISPOR; Amsterdam, The Netherlands, 2014.
  30. Stokes J, Yaworsky A, Galipeau N, Pompilus F, Foley C, Lamoureux R, et al. Evaluating and improving methods for cognitive debriefing PRO questionnaires. ISPOR; New Orleans, USA, 2013.
  31. Petrillo J, Cano SJ, McLeod LD, Coon CD. Which paradigm for evaluating patient-reported outcome instruments? A comparison of classical test theory, item response theory, and rasch measurement theory. ISOQOL; 2013; Miami, FL, USA
  32. Moderator: Regnault A, Speakers: Patrick D, Carrita P, Pavlovic M. Demonstrating treatment benefit using clinical outcomes assessments in global clinical trials: how reliable are the assessments from cross-cultural settings? ISPOR; 2013; Dublin, Ireland.
  33. Fofana F, Bonnaud-Antignac A, Guillemin I, Marrel A, Beriot-Mathiot A, Regnault A. A mixed method approach to saturation: applying partial least square regression to qualitative data. ISOQOL 20th Annual Conference; Miami, FL, USA, 2013.
  34. Fofana F, Bonnaud-Antignac A, Guillemin I, Marrel A, Beriot-Mathiot A, Regnault A. Applying partial least square regression to further explore concept structure and interviewee profiles in qualitative research. ISOQOL 20th Annual Conference; Miami, FL, USA, 2013.
  35. Cleanthous S, Molin A, Senior V, Wearden A. The role of Health Psychologists in Applied Settings: An online survey and interviews with Health Psychology Practitioners. Health Psychology Update. 2013;22(1):30-7.
  36. Cano S. Developments in rating scale methods. Dementias & Neurodegenerative Diseases Research Network Annual Conference; 2013; London, UK
  37. Regnault A, Arnould B, Anfray C. Assessing Health Outcomes in a Global Clinical Research Setting: Challenges and Solutions to Manage Cultural Variability. ISOQOL; 2012; Budapest, Hungary.
  38. Regnault A, Hamel JF, Patrick DL. Pooling of cross-cultural PRO data in multinational clinical trials: How much can poor measurement affect statistical power? ISOQOL; Denver, CO, USA, 2011.
  39. Regnault A, Gilet H, Meunier J, Arnould B. Statistical approach to development and validation of patient-reported outcomes tools for individual decision-making. International symposium on Patient-Reported Outcome and Quality of Life; 2011; Paris, France.
  40. Regnault A, Arnould B, Anfray C. Managing Cultural Variability in PRO Measurement in a Global Clinical Research Setting. ISOQOL; 2011; Denver, USA.
  41. Marquis P, Caron M, Emery M-P, Scott J, Arnould B. The Role of Health-Related Quality of Life Data in the Drug Approval Processes in the US and Europe: A Review of Guidance Documents and Authorizations of Medicinal Products from 2006 to 2010. Pharm Med. 2011;25(3):147-60.
  42. Hobart JC, Cano SJ. Rasch analysis. In: Jenkinson, Peter, Bromberg. Quality of Life Measurement in Neurodegenerative and Related Conditions. Cambridge: Cambridge University Press; 2011.
  43. Cano SJ, Hobart JC. The problem with health measurement. Patient Prefer Adherence. 2011;5:279-90.
  44. Cano SJ, Barrett LE, Zajieck JP, Hobart JC. Dimensionality is a relative concept. Multiple Sclerosis Journal. 2011;17(7):893-4.
  45. Viala-Danten M, Regnault A, Berdeaux G. The interpretation of patient-reported outcome data: a challenge for statisticians? International Society for Clinical Biostatistics; Montpellier, France, 2010.
  46. Lasch KE, Marquis P, Vigneux M, Abetz L, Arnould B, Bayliss M, et al. PRO development: rigorous qualitative research as the crucial foundation. Qual Life Res. 2010;19(8):1087-96.
  47. Hobart JC, Cano SJ, Thompson AJ. Effect sizes can be misleading: is it time to change the way we measure change? Journal of neurology, neurosurgery, and psychiatry. 2010;81(9):1044-8.
  48. Hobart JC, Cano SJ. Effect sizes can be misleading: Is it time to change the way we measure change? . ISOQOL; 2010; London, UK
  49. Gorecki C, Nixon J, Lamping DL, Brown JM, Cano S. The benefits of mixed methods in scale development II: Selecting optimal mode of administration ISOQOL; 2010; London, UK
  50. Gorecki C, Lamping DL, Nixon J, Brown JM, Cano S. The benefits of mixed methods in scale development I: The added value of Rasch analysis in pre-testing. ISOQOL; London, UK, 2010.
  51. Regnault A, Gilet H, Carita P, Arnould B. Exploring patients' satisfaction with anticoagulant treatment by applying Structural Equation Models to the Perception of AntiCoagulant Treatment Questionnaire (PACT-Q). ISPOR; Paris, France, 2009.
  52. Regnault A, Carita P, Gilet H, Arnould B. [Modélisation par équations structurelles de la satisfaction des patients vis-à-vis de leur traitement anticoagulant.] Modèles et Apprentissage en Sciences Humaines et Sociales; 2009; Toulouse, France.
  53. Regnault A, Mear I, Marfatia S, Mollon P. Addressing cross-cultural issues with Patient-Reported Outcomes assessments to strengthen evidence obtained in an international context. ISPOR; 2008; Athens, Greece.
  54. Cano SJ, Hobart JC. Watch out, watch out, the FDA are about. Developmental medicine and child neurology. 2008;50(6):408-9.
  55. Cano SJ, Hobart JC. Item response (letter). The Psychologist. 2008;21(2):169.
  56. Regnault A, Arnould B. Partial least squares (PLS) discriminant analysis: a method of choice for developing clinical decision-support tools from patient reported outcomes (PRO) data. ISOQOL; Budapest, Hungary, 2007.
  57. Regnault A, de la Loge C, Bounekkar A, Lamure M. [Le fonctionnement différentiel de l'item dans la démarche d'évaluation de la validité transculturelle des questionnaires patients.] Sante et Systemique. 2006;9(1-2):175-203.
  58. Regnault A, de la Loge C, Bounekkar A, Lamure M. Detection of Differential Item Functioning with Ordinal Response Format: Application of Ordinal Log-Linear Models. 5th Conference of the International Test Commission; 2006; Brussels, Belgium.
  59. Regnault A, de la Loge C, Arnould B, Lamure M. Quantitative aspects of an Operational Procedure to Assess Cross-Cultural Equivalence: Description and Applications. ISOQOL; 2006; Lisboa, Portugal.
  60. Marquis P, Arnould B, Acquadro C, Roberts WM. Patient-Reported Outcomes and Health-Related Quality of Life in effectiveness studies: pros and cons. Drug Development Research. 2006;67(3):193-201.
  61. Cano SJ, O'Connor RJ, Thompson AJ, Hobart JC. Exploring disability rating scale responsiveness II: do more response options help? Neurology. 2006;67(11):2056-9.
  62. Smith SC, Cano SJ, Browne JP, Lamping DL, Black NA, van der Meulen J, et al. Patient-Reported Outcome Measures (PROMs) for Routine use in Treatment Centres: Recommendations Based on A Review of the Scientific Evidence. London: Health Services Research Unit, London School of Hygiene & Tropical Medicine, London, UK; 2005.
  63. Regnault A, de la Loge C, Conway K, Lamure M. How could quantitative methods contribute to the assessment of a PRO instrument's Cross-cultural Equivalence? ISOQOL; San Fransisco, USA, 2005.
  64. Marquis P, Keininger D, Acquadro C, De La Loge C. Translating and evaluating questionnaires: cultural issues for international research. In: Fayers P, Hays R. Assessing Quality of Life in Clinical Trials. New York: Oxford University Press; 2005. p. 77-93.
  65. Hasle-Pham E, Arnould B, Spath HM, Follet A, Duru G, Marquis P. Role of clinical, patient-reported outcome and medico-economic studies in the public hospital drug formulary decision-making process: results of a European survey. Health Policy. 2005;71(2):205-12.
  66. Marquis P, Chassany O, Abetz L. A comprehensive strategy for the interpretation of quality-of-life data based on existing methods. Value Health. 2004;7(1):93-104.
  67. Barberger-Gateau P, Alioum A, Peres K, Regnault A, Fabrigoule C, Nikulin M, et al. The contribution of dementia to the disablement process and modifying factors. Dement Geriatr Cogn Disord. 2004;18(3-4):330-7.
  68. Arnould B, Regnault A, Girod I, Dubois D. Psychometric Tools designed for Medical Decision Making: Methodological and Analytical issues in item reduction, scoring, decision rule definition, and assessment of predictive validity. European Society for Medical Decision Making 9th Biennial Conference; 2004; Rotterdam, The Netherlands.
  69. Arnould B, de la Loge C, Abetz L, Regnault A, Duru G. Screeners, symptom and disability scales for use in clinical practice: their contribution to improve the use of drugs. ISPOR; 2004; Hamburg, Germany.
  70. Alioum A, Peres K, Verret C, Regnault A, Barberger-Gateau P. Determinants of progression and recovery through states of disability: use of a Markov model with piecewise constant intensities and covariates. Longevity, aging and degradation models; 2004; St Petersburg.
  71. Cano SJ, Warner TT, Hobart JC. What sample sizes for reliability and validity studies II: a prospective study. ISOQOL; 2003; Prague, Czech Republic
  72. Acquadro C, Berzon R, Dubois D, Leidy NK, Marquis P, Revicki D, et al. Incorporating the patient's perspective into drug development and communication: an ad hoc task force report of the Patient-Reported Outcomes (PRO) Harmonization Group meeting at the Food and Drug Administration, February 16, 2001. Value Health. 2003;6(5):522-31.
  73. Symonds T, Berzon R, Marquis P, Rummans TA. The clinical significance of quality-of-life results: practical considerations for specific audiences. Mayo Clin Proc. 2002;77(6):572-83.
  74. Chassany O, Sagnier PP, Marquis P, Fullerton S, Aaronson N, Group FtERIoQoLA. Patient-reported outcomes: the example of health-related quality of life – A European guidance document for the improved integration of health-related quality of life assessment in the drug regulatory process. Drug Information Journal. 2002;36(1):209-38.
  75. Marquis P. Health-related quality of life (HRQL). Value Health. 2001;4(4):344-5.
  76. Jambon B, Marquis P, Burke LB, Kind P, Kline Leidy N, Barofsky I, et al. A decisive step towards the recognition of patient reported outcomes in clinical trials. Quality of Life Newsletter. 2001;26:24-5.
  77. Acquadro C, Jambon B, Ellis D, Marquis P. Language and Translation Issues. In: Spilker B, editor. Quality of Life and Pharmacoeconomics in Clinical Trials. Philadelphia: Lippincott-Raven Publishers; 1996. p. 575-85.