Publications by Farrah Pompilus

Peer-reviewed publications

  1. Strzok S, Cleanthous S, Pompilus F, Cano SJ, Marquis P, Cohan S, et al. Development of a gait module to complement the 12-item Multiple Sclerosis Walking Scale: a mixed methods study. Multiple Sclerosis Journal. 2018;4(2):2055217318783766.
  2. Simon A, Pompilus F, Querbes W, Wei A, Strzok S, Penz C, et al. Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations. The Patient – Patient-Centered Outcomes Research. 2018.
  3. Cleanthous S, Strzok S, Pompilus F, Cano S, Marquis P, Cohan S, et al. Addressing the targeting range of the ABILHAND-56 in relapsing–remitting multiple sclerosis: A mixed methods psychometric study. Multiple Sclerosis Journal – Experimental, Translational and Clinical. 2018;4(2):2055217318776990.
  4. Taylor F, Reasner DS, Carson RT, Deal LS, Foley C, Iovin R, Lundy JJ, Pompilus F et al. Development of a Symptom-Based Patient-Reported Outcome Instrument for Functional Dyspepsia: A Preliminary Conceptual Model and an Evaluation of the Adequacy of Existing Instruments. Patient. 2016;9(5):409-18.
  5. Eek D, Krohe M, Mazar I, Horsfield A, Pompilus F, Friebe R, et al. Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature. Patient Prefer Adherence. 2016;10:1609-21.
  6. Pompilus F, Burgess SM, Hudgens S, Banderas B, Daniels S. Development and validation of a novel patient-reported treatment satisfaction measure for hyperfunctional facial lines: facial line satisfaction questionnaire. J Cosmet Dermatol. 2015;14(4):274-85.
  7. Alexis A, Daniels SR, Johnson N, Pompilus F, Burgess SM, Harper JC. Development of a new patient-reported outcome measure for facial acne: the Acne Symptom and Impact Scale (ASIS). J Drugs Dermatol. 2014;13(3):333-40.
  8. Stokes J, Evans CJ, Pompilus F, Shields AL, Summers KH. Development of a questionnaire to assess the impact of chronic low back pain for use in regulated clinical trials. Patient. 2013;6(4):291-305.
  9. Lasch KE, Fitzgerald K, Ganguli A, Bonthapally V, Pompilus F, Delbecque L, et al. Using primary patient data to identify the symptoms of brain metastases to develop a patient-reported outcome measure. J Clin Oncol 2012;30:e12515.


Oral communications

  1. Lasch KE, Ganguli A, Bonthapally V, Pompilus F, Delbecque L, Fitzgerald K, et al. Development of a patient-reported outcome instrument in brain metastases: the Brain Metastases Symptom and Impact Questionnaire (BASIQ). IPSOR 2012; Washington DC, USA.



  1. Bell JA, Pompilus F, Galaznik A, Strzok S, Bejar R, Fram RJ, et al. Enhancing the Content of the EORTC QLQ-C30 to Maximize the Detection of Treatment Benefit in Hematological Stem Cell Disorders Using the EORTC Item Library. American Society of Hematology annual meeting; Atlanta, GA, USA, 2017.
  2. Bell JA, Galaznik A, Pompilus F, Strzok S, Fram RJ, Faller DV, et al. Patient Perspectives on Symptom Experience and Impact on Health-Related Quality of Life in Higher-Risk Myelodysplastic Syndromes, Chronic Myelomonocytic Leukemia and Low-Blast Acute Myeloid Leukemia. American Society of Hematology annual meeting; Atlanta, GA, USA, 2017.
  3. Petrillo J, Cadavid D, Castrillo-Viguera C, Cleanthous S, Pompilus F, Strzok S, et al. Expanding Our Understanding of Daily Life Activity Impact in Patients with Multiple Sclerosis. 7th Joint ECTRIMS-ACTRIMS Meeting; Paris, France, 2017.
  4. Karagiannis T, Marquis P, Petersen J, Meyers OI, Chui SY, Campbell AK, Strzok S, Pompilus F, Piault E. Understanding patients’ ability to function in order to inform clinical benefit in oncology studies. ISPOR; Glasgow, UK, 2017.
  5. Simon A, Pompilus F, Querbes W, Penz C, Agarwal S, Strzok S, et al. A qualitative analysis of disease burden in patients with acute intermittent porphyria and recurrent attacks.  ISPOR; Boston, MA, USA, 2017.
  6. Chen SY, Strzok S, Pompilus F, Cleanthous S, Cano S, Marquis P, et al. Patient-Reported Outcome Measurement in Manual Ability for Multiple Sclerosis: Addressing the Targeting Issues of the ABILHAND.  American Academy of Neurology Boston, MA, USA, 2017.
  7. Chen SY, Strzok S, Cleanthous S, Pompilus F, Cano S, Marquis P, et al. Development of a Gait Module to Complement the 12-item Patient-Reported Multiple Sclerosis Walking Scale.  American Academy of Neurology 2017 – 69th Annual Meeting; Boston, MA, USA, 2017.
  8. Chen SY, Pompilus F, Strzok S, Cleanthous S, Cano S, Marquis P, et al. Development of a Conceptual Framework for Daily Life Activities in Patients with Early Stage Relapsing-Remitting Multiple Sclerosis.  32nd Congress of the European Committee for Treatment and Research in Multiple Sclerosis; London, UK, 2016.
  9. Yaworsky A, Ojo O, Foley C, Bonthapally V, Ma E, Norquist J, Pompilus F et al. Development and Content Validity Testing of the PROs of Fatigue in Cancer (PROOF-C) Symptom Severity Assessment. ISOQOL; Philadelphia, USA, 2015.
  10. Pompilus F, Lindberg-Springs S, Seoane E. A Review of Clinical Outcomes Assessments Used in FDA Approved Drug Labels for Mental Health Conditions. ISOQOL; Philadelphia, USA, 2015.
  11. Armstrong A, Sundaram M, Foley C, Pompilus F, Stokes J, Shields A. Content development of patient-reported outcome instruments for the measurement of the primary signs and symptoms of chronic plaque psoriasis. ISOQOL; Vancouver, Canada, 2015.
  12. Armstrong A, Shields A, Stokes J, Pompilus F, Foley C, Iovin R, et al. Development of a Patient-Reported Outcomes Instrument for the Measurement of Treatment Satisfaction in Plaque Psoriasis. World Congress of Dermatology; Vancouver, Canada, 2015.
  13. Taylor F, Mahmoud D, Hudgens S, Pompilus F, Hwang S, Komrokji R, et al. Health-Related Quality of Life and Productivity Impact of Myelodysplastic Syndromes (MDS): The Patients Perspective. International Symposium on Myelodysplastic Syndromes Berlin, Germany, 2013.
  14. Stokes J, Yaworsky A, Galipeau N, Pompilus F, Foley C, Lamoureux R, et al. Evaluating and improving methods for cognitive debriefing PRO questionnaires. ISPOR; New Orleans, USA, 2013.
  15. Pompilus F, Daniels S, Fitzgerald K, Evans C, Banderas B, Burgess SM. Development of a Patient-Reported Treatment Satisfaction Measure for Hyperfunctional Lines in the Upper Face. ISOQOL; Miami, USA, 2013.
  16. Cather JC, Horn EJ, Sundaram M, Mukherjee Bal V, Wang K, Foley C, Pompilus F et al. In depth investigation of patient-reported sexual, reproductive, and relationship impacts of psoriasis. Academy of Dermatology and Venereology; Istanbul, Turkey, 2013.
  17. Supina D, Shields AL, Stokes J, Taylor F, Pompilus F, Delbecque L, et al. A Conceptual Model for Binge Eating Disorder Based on Literature Review, Expert Insights, and Patient Interviews. Eating Disorders Research Society; Porto, Portugal, 2012.
  18. Fitzgerald K, Ganguli A, Bonthapally V, Pompilus F, Delbecque L, Lasch KE, et al. Review of the content validity of the patient-reported outcome measures used in patients with brain metastases. ISPOR; Washington DC, USA, 2012.
  19. Pompilus F. Stereotype Threat: Individual Differences in Self-Monitoring, Anxiety, and Perceptions of Barriers University of North Florida. Annual Society for Personality and Social Psychology Conference; Las Vegas, USA, 2010.
  20. Lewis BE, Arbuckle R, Abetz L, Carson R, Pompilus F, Johnston J, et al. Development of pediatric irritable bowel syndrome with constipation measures: results of qualitative interviews with children and their primary caregivers. North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual meeting; New Orleans, USA, 2010.